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Dataset related to article "BEING ADULTS WITH CEREBRAL PALSY: RESULTS OF A MULTICENTER ITALIAN STUDY ON QUALITY OF LIFE AND PARTICIPATION"

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NIAID Data Ecosystem2026-03-12 收录
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https://zenodo.org/record/5222621
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For each participant, we collected the following: – Principal clinical details. – Level of severity (I best–V worst) according to the Gross Motor Function Classification System (GMFCS) Manual Ability Classification System (MACS) , the Communication Function Classification System (CFCS). – Neuroradiological documentation classified in accordance with the Surveillance of Cerebral Palsy in Europe working group  After receiving written informed consent, participants completed the following protocol: – Specific questionnaires to assess: (a) Quality of life: the SF-36  (b) Participation: LIFE-H (c) Socio-economic status (SES, Hollingshead index  – A semi-structured interview based on parameters agreed between the various centers and designed to obtain information concerning(a) General state of health and aspects of daily life relating to their occupation, free time, and autonomy; (b) Affective relations and capacity for self-observation of their inner world, investigating emotions, affections, and feelings, such as anger, sadness, and happiness
创建时间:
2021-08-20
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