Health Study Hub

The Health Study Hub is an inventory of German studies in the field of clinical, public health and epidemiological health research. The aim of the Health Study Hub is to enable and foster the implementation of the FAIR principles (Findability, Accessibility, Interoperability and Reusability) in the health domain. Unlike other initiatives, the Health Study Hub focuses not only on clinical research, but also on public health studies. The Health Study Hub also provides access to study materials such as (sample) questionnaires, data dictionaries and other information down to variable level. At the heart of the hub is a metadata model, which is part of the publication policy available here. The content of the Health Study Hub consists of quality-assured submission by users, either via a registration form or an application programming interface. Submission and storage is free to anyone after initial account registration. In addition, data stewards actively collect available information from (public) sources. Furthermore, this platform aggregates and harmonises information already entered in different public repositories in order to provide a holistic view of the German research landscape in the aforementioned research areas. The date and time of the last data modification is displayed at the bottom of the screen. As the platform is being developed for the community, it must meet the needs and requirements of the community. To ensure this, we are working closely with domain experts within the NFDI4Health project who represent communities of interest. However, we also invite everyone else to suggest features, ideas, requirements and report bugs to the development team. You can do this by sending us an email or by using the blue feedback box on the right side of the screen. We are constantly expanding and improving the Health Study Hub, information on past and future releases can be found here. The bottom of the screen also displays information about the current software and metadata version. More information about the service and the project is available on our project website.

德国中央健康研究枢纽是一个服务于两种不同用户群体的平台。首先，它允许科学家和数据持有组织（数据生产者）以FAIR原则（可发现性、可访问性、互操作性、可重用性）发布其项目特征、文档以及与其研究活动相关的数据。显而易见，患者级数据不得公开共享，然而，描述患者级数据的元数据以及数据访问信息可以通过该平台进行共享（保存描述信息）。另一类用户是科学家或研究者（数据消费者），他们热衷于寻找关于过往和正在进行中的研究信息，并对重新利用现有患者级数据进行其项目研究感兴趣。简而言之，该平台连接了临床、公共卫生和流行病学健康研究领域的供数方与用数方，以促进数据的再利用。平台聚合和协调已进入各种公共存储库（如DRKS、clinicaltrials.gov、WHO ICTRP）的信息，为上述研究领域的德国研究格局提供一个全面的视角。此外，数据管理员积极从（公共）资源中收集可用的信息，如无法自动集成的网站。该服务始于COVID-19大流行期间。