Improving Patient Engagement and Understanding Its Impact on Research through Community Review Boards [Methods Study], Nashville, Tennessee, 2013-2018

Currently many researchers get input on their research projects from other researchers. But researchers want their work to be more patient centered, or relevant to patients' preferences, needs, and values. To do this, researchers need a way to measure how patient centered a research project is. They also need ways to get input from patients and community members on research projects.
In this study, the research team created a scale with a set of questions to measure how patient centered input is on research projects. The team tested the scale to be sure it measured patient-centeredness reliably and accurately.
Then the research team compared two ways researchers could get input on their projects:

Community Engagement Studio, or CE Studio, brings together patients and community members.
Translational Studio, or T2 Studio, brings together researchers.

The team wanted to learn if there were differences in how patient centered input was from CE Studio and T2 Studio.