Supplementary materials: What works when: mapping patient and stakeholder engagement methods along the ten-step continuum framework

These are peer-reviewed supplementary tables for the article 'What works when: mapping patient and stakeholder engagement methods along the ten-step continuum framework' published in the Journal of Comparative Effectiveness Research.Supplemental Table A. CINAHL® (Cumulative Index of Nursing and Allied Health) Database Search StringSupplemental Table B. Patient Participant Counts for Game Board ResponsesSupplemental Table C. Researcher Participant Counts for Game Board ResponsesSupplemental Table D. Other Stakeholder Participant Counts for Game Board ResponsesSupplemental Table E. Qualitative Summary – Concepts by Participant GroupSummary: Aim: This study provides a recommended ‘patient engagement translation table’ that identifies evidence-based methods for meaningful patient engagement along a ten-step framework for continuous engagement. Materials & methods: We used a mixed methods research design to collect data on preferred engagement methods, including an environmental scan of available literature, interviews and focus groups with patient-centered outcomes research stakeholders to match methods with research steps and a modified Delphi process with subject matter experts to create the final translation table. Results: Evidence-based engagement methods included community partnerships, focus groups, interviews, meetings, sharing print materials, social media, storytelling, surveys and including patients as research team members. Conclusion: Our recommended patient engagement translation table is designed to assist investigators in determining appropriate engagement methods for meaningful interactions with stakeholders.

本数据集包含发表于《比较有效性研究杂志》的论文《何时有效：绘制患者及利益相关者参与方法沿十步连续框架的映射》的同行评审补充表格。补充表A：CINAHL®（护理与 allied health 累积索引）数据库检索字符串；补充表B：游戏棋盘响应的患者参与人数统计；补充表C：游戏棋盘响应的研究者参与人数统计；补充表D：游戏棋盘响应的其他利益相关者参与人数统计；补充表E：定性总结——按参与群体汇总的概念。摘要：目的：本研究提供了一项推荐的‘患者参与翻译表’，旨在识别沿持续参与十步框架的有据可依的方法，以实现有意义的患者参与。材料与方法：本研究采用混合方法研究设计，收集关于首选参与方法的数据，包括对现有文献的环境扫描、与以患者为中心的结局研究利益相关者的访谈和焦点小组，以将方法与研究步骤相匹配，以及与主题专家进行修改后的德尔菲过程，以创建最终的翻译表。结果：基于证据的参与方法包括社区伙伴关系、焦点小组、访谈、会议、共享印刷材料、社交媒体、讲故事、调查以及将患者作为研究团队成员。结论：我们推荐的患者参与翻译表旨在协助研究人员确定与利益相关者进行有意义的互动的适当参与方法。