HDR UK Datasets

github2024-05-09 更新2024-05-31 收录

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https://github.com/HDRUK/datasets

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资源简介：

此仓库自动收集了Gateway上发布的所有数据集，包括所有高级元数据，基于最新的规范。

This repository automatically collects all datasets published on the Gateway, including all advanced metadata, based on the latest specifications.

创建时间：

2020-05-01

原始信息汇总

HDR UK Gateway Datasets (Daily Extract)

数据集概述

数据集来源：HDR UK Gateway
数据收集方式：自动收集
数据内容：包括所有高级别元数据
数据格式：CSV, JSON
数据更新频率：每日

数据集列表

ALLIANCE > AVON LONGITUDINAL STUDY OF PARENTS AND CHILDREN (1)

数据集名称：Avon Longitudinal Study of Parents and Children

ALLIANCE > BARTS HEALTH (11)

数据集名称：Somerset Cancer Registry
数据集名称：CDE Encounters
数据集名称：DENDRITE Dataset
数据集名称：CDE Surginet Documentation
数据集名称：Barts Health NHS Trust COVID-19 EHR Extracted Dataset
数据集名称：ARIA Dataset
数据集名称：Sectra PACS
数据集名称：Community Services Dataset
数据集名称：Maternity Services Dataset
数据集名称：Freetext Dataset
数据集名称：Problems, Diagnosis and Procedures

ALLIANCE > CPRD (4)

数据集名称：Quality of Life of Colorectal Cancer Survivors: Patient Reported Outcomes (Aurum)
数据集名称：Quality of Life of Cancer Survivors: Pilot Patient Reported Outcomes (Gold)
数据集名称：Quality of Life of Cancer Survivors: Pilot Patient Reported Outcomes (Aurum)
数据集名称：Quality of Life of Colorectal Cancer Survivors: Patient Reported Outcomes (Gold)

ALLIANCE > CYSTIC FIBROSIS TRUST (10)

数据集名称：Cystic Fibrosis Patient Sweat Tests
数据集名称：Cystic Fibrosis Patient CFQ-R
数据集名称：Cystic Fibrosis Patient Microbiology Cultures
数据集名称：Cystic Fibrosis Patient Tendon Rupture
数据集名称：Cystic Fibrosis Patient NTM culture
数据集名称：Cystic Fibrosis Patient Transplants
数据集名称：Cystic Fibrosis Patient Chronic Medication
数据集名称：Cystic Fibrosis Patient Demographics
数据集名称：Cystic Fibrosis Patient Annual Review Encounters
数据集名称：Cystic Fibrosis Patient Liver Enzyme

ALLIANCE > GENOMICS ENGLAND (1)

数据集名称：GENOMICS ENGLAND 100K BIOINFORMATICS DATA

ALLIANCE > GREAT ORMOND STREET HOSPITAL (1)

数据集名称：COVID-19 Staff Testing of Antibody Responses Study (Co-STARS)

ALLIANCE > HQIP (36)

数据集名称：National Paediatric Diabetes Audit - Parent and Patient Recorded Experience measures
数据集名称：National Asthma and COPD Audit Programme (NACAP):COPD and adult asthma secondary care organisational dataset
数据集名称：National Maternity and Perinatal Audit Organisational Survey 2019
数据集名称：National Audit of Psychosis - Audit on Early Intervention in Psychosis services - contextual data
数据集名称：Sentinel Stroke National Audit Programme Clinical Dataset
数据集名称：National Audit of Psychosis - Audit on Early Intervention in Psychosis services - case note audit
数据集名称：National Paediatric Diabetes Audit - Spotlight survey of workforce in Paediatric Diabetes Units
数据集名称：Sentinel Stroke National Audit Programme Acute Organisational survey dataset
数据集名称：Falls and Fragility Fracture Audit Programme National Audit of Inpatient Falls clinical dataset
数据集名称：National Audit of Dementia - spotlight audit on the prescription of psychotropic medication, 2019
数据集名称：Epilepsy 12 - National organisational audit (service descriptor questionnaire) and Trust profile
数据集名称：National Oesophago-Gastric Cancer Audit - clinical dataset
数据集名称：Paediatric Intensive Care Audit Network - core dataset (admission)
数据集名称：Maternal, Newborn and Infant Clinical Outcome Review Programme - perinatal surveillance dataset
数据集名称：National Cardiac Audit Programme - Myocardial Ischaemia National Audit Project (MINAP)
数据集名称：National Asthma and COPD Audit Programme (NACAP): Adult Asthma secondary care clinical dataset
数据集名称：National Asthma and COPD Audit Programme (NACAP): primary care workstream resources
数据集名称：National Vascular Registry Audit Carotid Lower Limb Amputation clinical dataset
数据集名称：National Asthma and COPD Audit Programme (NACAP): Pulmonary rehabilitation - organisational audit
数据集名称：National Audit of Psychosis - Audit on Early Intervention in Psychosis services - patient experience survey
数据集名称：Falls and Fragility Fracture Audit Programme Fracture Liaison Service Database clinical dataset
数据集名称：National Asthma and COPD Audit Programme (NACAP): Pulmonary rehabilitation - clinical audit
数据集名称：National Cardiac Audit Programme - National Congenital Heart Disease Audit (NCHDA)
数据集名称：National Paediatric Diabetes Audit - Spotlight survey of diabetes-related technologies
数据集名称：Paediatric Intensive Care Audit Network - core dataset (referral)
数据集名称：Paediatric Intensive Care Audit Network - core dataset (transport)
数据集名称：Paediatric Intensive Care Audit Network - customised data collection
数据集名称：National Cardiac Audit Programme - National Audit of Percutaneous Coronary Interventions (PCI)
数据集名称：National Audit of Psychosis - Early Intervention Psychosis Audit patient experience survey
数据集名称：National Paediatric Diabetes Audit - core clinical dataset (care processes and outcomes)
数据集名称：National Asthma and COPD Audit Programme (NACAP): secondary care workstream – children and young people asthma (organisational)
数据集名称：National Asthma and COPD Audit Programme (NACAP): COPD secondary care clinical dataset
数据集名称：Falls and Fragility Fracture Audit Programme National Hip Database Facilities Survey 2019
数据集名称：National Asthma and COPD Audit Programme (NACAP): secondary care workstream – children and young people asthma (clinical)
数据集名称：National Vascular Registry Audit Carotid Endarterectomy Clinical Dataset
数据集名称：Falls and Fragility Fracture Audit Programme National Hip Database clinical dataset

ALLIANCE > IMPERIAL COLLEGE LONDON (2)

数据集名称：REal-time Assessment of Community Transmission (REACT-2)
数据集名称：Real-time Assessment of Community Transmission (REACT) Study 2: COVID antibody

ALLIANCE > ISARIC 4C (1)

数据集名称：COVID-19 Clinical Information Network (CO-CIN)

ALLIANCE > NHS DIGITAL (39)

数据集名称：Mental Health Services Data Set - Community
数据集名称：Cancer Registration Data
数据集名称：Mental Health Minimum Dataset v4 (Sensitive) Episodes
数据集名称：Mental Health & Learning Disabilities Dataset v 1 (Non-Sensitive) Events
数据集名称：Mental Health Services Data Set - Service Users
数据集名称：Mental Health Minimum Dataset v4 (Non-Sensitive) Episodes
数据集名称：Mental Health Minimum Dataset v2.6 (Sensitive)
数据集名称：Mental Health & Learning Disabilities Dataset v 1 (Sensitive) Records
数据集名称：Mental Health Minimum Dataset v3_3.5 (Sensitive)
数据集名称：Bridge file: Hospital Episode Statistics to Diagnostic Imaging Dataset
数据集名称：Mental Health and Learning Disabilities Data Set
数据集名称：Mental Health Minimum Dataset v4 (Sensitive) Events
数据集名称：Mental Health Services Data Set
数据集名称：Mental Health Minimum Dataset v4.1 (Sensitive) Episodes
数据集名称：Mental Health & Learning Disabilities Dataset v 1 (Non-Sensitive) Records
数据集名称：Mental Health & Learning Disabilities Dataset v 1 (Sensitive) Episodes
数据集名称：HES:Civil Registration (Deaths) bridge
数据集名称：Mental Health Minimum Dataset v2.6 (Non-Sensitive)
数据集名称：Bridge file: Hospital Episode Statistics to Mental Health Minimum Data Set
数据集名称：Mental Health Services Data Set - Inpatients
数据集名称：Mental Health Minimum Dataset v4 (Sensitive) Records
数据集名称：Mental Health Services Data Set - Currencies
数据集名称：Mental Health Minimum Dataset v4.1 (Non-Sensitive) Events
数据集名称：Mental Health Minimum Dataset v3_3.5 (Non-Sensitive)
数据集名称：Mental Health Minimum Data Set
数据集名称：COVID-19 SARI-Watch (formerly CHESS)
数据集名称：Mental Health Minimum Dataset v4.1 (Non-Sensitive) Episodes
数据集名称：Mental Health Minimum Dataset v4 (Non-Sensitive) Events
数据集名称：National Diabetes Audit
数据集名称：Mental Health & Learning Disabilities Dataset v 1 (Non-Sensitive) Episodes
数据集名称：Mental Health Minimum Dataset v4.1 (Non-Sensitive) Records
数据集名称：Secondary Uses Services Payment By Results
数据集名称：Mental Health Minimum Dataset v4.1 (Sensitive) Records
数据集名称：Patient Reported Outcome Measures
数据集名称：Mental Health Minimum Dataset v4.1 (Sensitive) Events
数据集名称：Medicines dispensed in Primary Care (NHSBSA data)
数据集名称：MSDS (Maternity Services Data Set)
数据集名称：Mental Health Minimum Dataset v4 (Non-Sensitive) Records

ALLIANCE > OXFORD UNIVERSITY HOSPITALS (1)

数据集名称：Oxford Healthcare Workers

ALLIANCE > OXFORD UNIVERSITY HOSPITALS NHS TRUST (13)

数据集名称：SOLUS
数据集名称：Millennium Clinical Events
数据集名称：ARIA Medonc
数据集名称：Endobase
数据集名称：ARIA Radonc
数据集名称：Infoflex Cancer Registry
数据集名称：CRIS
数据集名称：LIMS
数据集名称：TheatreEvents
数据集名称：JANUS
数据集名称：OUH Patient Master Index
数据集名称：Sunquest
数据集名称：CellPath

ALLIANCE > PUBLIC HEALTH SCOTLAND (2)

数据集名称：Unscheduled Care Datamart
数据集名称：2011 Census variables (and variable breakdowns)

ALLIANCE > ROYAL COLLEGE OF GENERAL PRACTITIONERS (1)

数据集名称：The Royal College of General Practitioners (RCGP) Research and Surveillance Centre (RSC) primary care sentinel network and database

ALLIANCE > SAIL (50)

数据集名称：Bowel Screening Wales
数据集名称：COVID-19 Shielded People list
数据集名称：Careers Wales dataset
数据集名称：Pathology Data from WRRS
数据集名称：Active Adult Survey
数据集名称：Critical Care Dataset
数据集名称：NHS 111 Dataset
数据集名称：Intensive Care National Audit and Research Centre - Covid19
数据集名称：Millennium Cohort Study

搜集汇总

数据集介绍

构建方式

HDR UK数据集通过自动化流程从Gateway上发布的所有数据集中收集，并基于最新的元数据规范进行高层次元数据的提取。该过程确保了数据的实时性和规范性，每日自动生成CSV和JSON格式的数据提取文件，便于用户访问和使用。

使用方法

用户可以通过访问提供的CSV或JSON文件直接获取数据集，这些文件包含了每日更新的数据。数据集适用于多种健康数据分析场景，如流行病学研究、临床试验设计等。用户可以根据具体需求选择合适的数据子集进行分析，并结合其他数据源进行综合研究。

背景与挑战

背景概述

HDR UK Datasets是由英国健康数据研究联盟（HDR UK）创建的一个综合性健康数据集，旨在通过收集和整合来自多个机构和研究项目的高质量健康数据，推动健康数据科学的发展。该数据集的创建时间可追溯至2019年，主要研究人员和机构包括英国的多个顶尖医疗机构、大学和研究机构，如帝国理工学院、牛津大学医院等。其核心研究问题集中在如何通过大规模健康数据的整合与分析，提升疾病预防、诊断和治疗的效果。HDR UK Datasets的推出对健康数据科学领域产生了深远影响，为研究人员提供了丰富的数据资源，促进了跨机构和跨领域的合作研究。

当前挑战

HDR UK Datasets在构建过程中面临了诸多挑战。首先，数据来源的多样性和复杂性使得数据的标准化和整合变得异常困难，尤其是在不同机构之间数据格式和元数据标准不一致的情况下。其次，数据隐私和安全问题也是一大挑战，如何在确保数据安全的前提下，实现数据的共享和利用，是该数据集面临的重要问题。此外，数据的质量控制和验证也是一个持续的挑战，确保数据的准确性和可靠性对于后续的研究至关重要。最后，如何有效地管理和维护如此大规模的数据集，确保其长期可用性和更新性，也是该数据集面临的长期挑战。

常用场景

经典使用场景

HDR UK数据集在医疗健康领域中被广泛应用于多种经典场景，包括但不限于疾病流行病学研究、患者健康状况的长期追踪、以及医疗服务的质量评估。例如，Avon Longitudinal Study of Parents and Children数据集用于研究儿童健康与发育，而COVID-19相关数据集则支持了全球范围内的疫情监测与防控策略制定。

解决学术问题

该数据集在学术研究中解决了多个关键问题，如疾病传播模型的构建、患者预后预测模型的优化，以及医疗资源分配的效率评估。通过提供高质量的医疗数据，HDR UK数据集为研究人员提供了丰富的数据支持，推动了公共卫生、流行病学和临床医学等领域的研究进展。

实际应用

在实际应用中，HDR UK数据集被广泛用于医疗决策支持系统、疾病预防控制中心的数据分析平台，以及医院管理系统的优化。例如，COVID-19数据集帮助医疗机构实时监控疫情发展，调整资源分配，而癌症登记数据则支持了个性化治疗方案的制定。

数据集最近研究