Supplemental figures and tables of a European multicenter validation study of the External Genitalia Score

Context: Standardized description of external genitalia is needed in the assessment of children with atypical genitalia.

Objectives: To validate the External Genitalia Score (EGS), to present reference values for preterm and term babies up to 24 months and correlate obtained scores with anogenital distances (AGDs).

Design, Setting: A European multicentre (n=8) validation study  was conducted from 07/2016 until 07/2018.

Patients and Methods: EGS is based on the external masculinization score but uses a gradual scale from female to male (range 0-12) and terminology appropriate for both sexes. The reliability of EGS and AGD’s were determined by the interclass correlation coefficient (ICC). Cross-sectional data were obtained in 686 term (0-24 months), and 181 preterm babies and 111 babies with atypical genitalia.

Results: ICC of EGS in typical and atypical genitalia is excellent and good. Median EGS (10th - 90th centile) in males < 28 weeks gestation is 10 (8.6-11.5); in male...