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Booklets for parents and children: XYY and Trisomy X

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Figshare2014-10-14 更新2026-04-29 收录
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https://figshare.com/articles/dataset/Booklets_for_parents_and_children_XYY_and_Trisomy_X/1203560
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Booklets for parents considering whether to disclose a diagnosis of Trisomy X or XYY to their child and others. For each gender, one booklet discusses the factors to be considered, and the pros and cons of disclosure. In addition there is a gender-appropriate picture book that can be used to discuss with your child how an extra chromosome can affect development. These booklets are free to download. We are evaluating these materials and would love to have feedback from you - please tell us what you liked and what we could do better. Feedback can be sent via email to: Sarah Wynn [sarah@rarechromo.org].
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2014-10-14
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