CareD

CareD is a Database of interviews conducted in the context of a research projet about caregiving facing illness. The study aims to understand the profile of informal caregivers, analyze the characteristics of care provision, and explore the strategies that informal caregivers adopt to ensure care in the face of their own illness and/or disability. A qualitative methodology was used, with a non-probabilistic sampling based on semi-structured interviews and content analysis. Participated 10 informal caregivers, 80% of whom were women. The results indicated that the profile of the informal caregiver is predominantly female, adult or older adult, and living with the person being cared for. It was concluded that being an informal caregiver involves several multidimensional impacts during the care process, with the restriction of autonomy and freedom being the most frequently mentioned by the sample. In situations of illness and/or disability of the caregiver, there is a particular reinforcement of informal support, as well as new requests for support within the informal network. This study contributes to exploring the challenges faced by caregivers when they themselves are in a situation of illness and/or disability, as well as the challenges related to the provision of care itself.CareD是一项围绕疾病照护主题开展的研究项目所形成的访谈数据库。 本研究旨在明晰非正式照护者（informal caregiver）的群体特征画像，剖析照护服务的提供特征，并探索非正式照护者在自身罹患疾病或出现功能障碍时，为保障照护工作顺利开展所采取的应对策略。本研究采用质性研究方法（qualitative methodology），以非概率抽样（non-probabilistic sampling）为基础，结合半结构化访谈（semi-structured interview）与内容分析法（content analysis）开展研究。共计10名非正式照护者参与本次研究，其中80%为女性。研究结果显示，非正式照护者的群体以女性、成年或老年群体为主，且多与被照护者共同居住。研究结论表明，在照护实施过程中，非正式照护者需承受多维度的综合影响，其中自主权与行动自由受限是受访样本提及频次最高的问题。当照护者自身罹患疾病或出现功能障碍时，非正式支持网络会得到进一步强化，同时该网络也会催生新的照护需求。 本研究有助于深入探索照护者自身陷入疾病或功能障碍困境时所面临的挑战，以及照护服务提供过程本身所伴随的各类难题。