Data for: Clusters of non-adherence to medication in neurological patients
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In this prospective observational study data from 429 neurological patients were collected either during their visit in the outpatient clinic or during their stay on the neurological ward in the Department of Neurology (Jena University Hospital, Jena, Germany) between January and May 2018. The self-reported demographical data included: age, gender, marital status, level of education, and occupation. In addition, patients were asked on the details of their medication: who takes care of their daily medication and how much medication they take each day. Adherence was assessed using the Stendal Adherence with Medication Score (SAMS). The questionnaire includes 18 questions forming a cumulative scale (0 - 72) in which 0 indicates complete adherence and 72 complete non-adherence. All subjects gave written informed consent and the study was approved by the ethics committee of the Jena University Hospital, Jena, Germany. Further references: Prell T, Schaller D, Perner C, Franke GH, Witte OW, Kunze A, Grosskreutz J. Comparison of anonymous versus nonanonymous responses to a medication adherence questionnaire in patients with Parkinson's disease. Patient Prefer Adherence. 2019 Jan 18;13:151-155. doi: 10.2147/PPA.S186732 Franke G, Jagla M, Reimer J, Haferkamp L, Türk T, Witzke O. Erfassung von Medikamenten-Compliance bei erfolgreich Nierentransplantierten mit einer erweiterten Version des Morisky-Scores – dem Essener Compliance Score (ECS). Psychotherapie, Psychosomatik, Medizinische Psychologie. 2009. Jäger S, Franke G, Reimer J, et al. Der Zusammenhang zwischen Medikamenten-Compliance und gesundheitsbezogener Lebensqualität bei Nierentransplantierten. AK Klinische Psychologie im BDP: Psychische Störungen in der somatischen Rehabilitation. 2009:79-93. Türk T, Franke G, Jagla M, et al. Development of the Essen Compliance Score – Measurement of adherence in kidney transplant patients. American Journal of Transplantation. 2009;9. Rottlaender D, Scherner M, Schneider T, Erdmann E. Polypharmacy, compliance and non-prescription medication in patients with cardiovascular disease in Germany. Dtsch Med Wochenschr. 2007;132:139-144.
本项前瞻性观察研究收集了2018年1月至5月期间，于德国耶拿大学医院神经内科门诊就诊或住院神经内科病房的429名神经系统疾病患者的相关数据。受试者自我报告的人口统计学资料包括：年龄、性别、婚姻状况、受教育水平与职业。此外，调研团队还收集了患者的用药细节信息：负责协助其日常服药管理的人员，以及每日服药剂量。用药依从性采用斯滕德尔用药依从性评分（Stendal Adherence with Medication Score, SAMS）进行评估，该问卷包含18个问题，形成累计评分量表（0~72分），其中0分代表完全用药依从，72分代表完全不依从。所有受试者均签署了书面知情同意书，本研究方案已通过德国耶拿大学医院伦理委员会审核批准。 参考文献： 1. Prell T, Schaller D, Perner C, Franke GH, Witte OW, Kunze A, Grosskreutz J. 帕金森病患者对用药依从性问卷的匿名与非匿名应答对比. 患者偏好与依从性. 2019年1月18日;13:151-155. doi: 10.2147/PPA.S186732 2. Franke G, Jagla M, Reimer J, Haferkamp L, Türk T, Witzke O. 采用改良版Morisky评分——埃森依从性评分（ECS）评估肾移植成功患者的用药依从性. 心理治疗、心身医学与医学心理学. 2009. 3. Jäger S, Franke G, Reimer J, et al. 肾移植患者用药依从性与健康相关生活质量的相关性研究. BDP临床心理学分会：躯体康复中的精神障碍. 2009:79-93. 4. Türk T, Franke G, Jagla M, et al. 埃森依从性评分的开发——肾移植患者用药依从性的测量工具. 美国移植杂志. 2009;9. 5. Rottlaender D, Scherner M, Schneider T, Erdmann E. 德国心血管疾病患者的多重用药、依从性与非处方药物使用情况. 德国医学周报. 2007;132:139-144.
