Data_Sheet_1_Patients and Health Professional's Perspective of Functional Mobility in Parkinson's Disease.docx

Background: Functional mobility (FM) is the person's ability to move to accomplish daily living tasks and activities. FM limitations are common in Parkinson's disease, increase with disease progression, and can be highly disabling. Although several studies in Parkinson's disease (PD) field use this concept, only recently, a formal definition has been proposed.Objective: We aimed to explore patient's and health professional's perspectives of FM in PD.Methods: A focus group methodology has been used. Four focus groups, with a total of 10 patients and 10 health professionals, were performed. Six patients were early stage and four advanced stage. The health professional's group was composed of five neurologists and five physiotherapists. The suitability of the new concept, the impact of FM limitations in PD patient's daily routine, and the potential benefit of walking aids have been discussed.Results: All participants were able to provide a spontaneous definition of FM, matching with the proposed concept. All agreed that PD affects patient's FM, increasing the limitations with disease progression, and with the existence of a serious prejudice with walking aids that hinders its use. Early-stage patient's perspective seems to be more in line with neurologist's perspective, while the views of advanced-stage patients were closer to physiotherapist's views.Conclusion: FM concept was considered as intuitive and useful. FM limitations have an important physical and social impact in the advanced stage of the disease. Although patients and health professionals acknowledge walking aid's benefit improving patient's FM, the prejudice associated with this type of tools limits its recommendation and use.

背景：功能性运动（FM）是指个体为完成日常生活任务和活动而进行移动的能力。功能性运动障碍在帕金森病（PD）患者中普遍存在，随着疾病的进展而加剧，并可能导致严重的功能障碍。尽管帕金森病领域中的多项研究已采用此概念，但直至近期，才提出了一个正式的定义。目标：本研究旨在探讨帕金森病患者及医护人员对功能性运动在帕金森病中的看法。方法：本研究采用了焦点小组的方法。共进行了四个焦点小组，涉及10名患者和10名医护人员。其中，6名患者处于疾病早期阶段，4名处于晚期阶段。医护人员小组由5名神经科医生和5名物理治疗师组成。讨论了新概念的可适用性、功能性运动障碍对帕金森病患者日常生活的影響，以及步行辅助工具的潜在益处。结果：所有参与者均能自发地给出功能性运动的定义，与提出的概念相符。所有参与者均认为帕金森病会影响患者的功能性运动，随着疾病的进展而加剧限制，同时存在对步行辅助工具的严重偏见，这阻碍了其使用。早期阶段患者的观点似乎与神经科医生的看法更为一致，而晚期患者的观点则更接近物理治疗师的观点。结论：功能性运动概念被认为既直观又实用。在疾病的晚期阶段，功能性运动障碍对患者的身心和社会生活有着重要的影响。尽管患者和医护人员都认可步行辅助工具在改善患者功能性运动方面的益处，但与这类工具相关的偏见限制了其推荐和使用。