ALS Focus Wave 4 – Telehealth Survey

The NeuroVERSE record contains the following files: ALSFocusWave4_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 4. ALSFocusWave4_Telehealth.csv – This file contains responses to the Telehealth survey for people with ALS and current caregivers. This survey was available in Wave 4. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked. ALSFocusWave4_Demographics.csv – This file contains responses to the Demographics survey since ALS Focus launched in February 2020. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked. ALSFocusWave4_ALSFRSandVC.csv – This data file contains responses to questions on ALSFRS-R and Vital Capacity scores since Wave 1. Starting in Wave 2, participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day. ALSFocusWave4_HealthStatus.csv – This data file contains responses to the Health Status survey since Wave 2 when the Health Status survey opened. Participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day.