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Data from focus group discussions on Preferences of people with rheumatoid arthritis regarding technology for long-term symptom monitoring

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4TU.ResearchData2025-06-27 更新2026-04-23 收录
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https://data.4tu.nl/datasets/b6be7e95-3eb0-4e72-90bd-6b68b301bedb/1
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资源简介:
Data are audio recordings and notes from 4 focus group discussions with a total of 20 people with rheumatoid arthritis, and one focus group discussion with 14 rheumatology healthcare professionals. Topics discussed include 1. Reasons for utilization of technology and expected benefits, 2. Motivators and barriers to the adoption of technologies, 3. Level of effort patients were willing to invest in using these technologies, 4. Data collection, sharing interpretation and privacy concerns. Participants did not consent to share data beyond the project.

本数据集包含针对20名类风湿关节炎(rheumatoid arthritis)患者开展的4场焦点小组讨论(focus group discussions),以及针对14名风湿病学医护人员(rheumatology healthcare professionals)开展的1场焦点小组讨论的音频录音与会议记录。本次讨论涵盖以下议题:1. 技术使用的动因与预期收益;2. 技术采纳的激励因素与阻碍因素;3. 患者使用此类技术时愿意投入的努力程度;4. 数据收集、共享、解读及隐私相关顾虑。参与本次研究的受试者均未同意将数据用于本项目以外的场景。
创建时间:
2025-06-27
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