Het gebruik van uitkomstinformatie in de spreekkamer

This study employed a mixed-methods design. Using a grounded theory approach, we interviewed healthcare professionals (HCPs) (n=11) about the use of outcome data in patient consultations. Patients with prostate cancer, lung cancer, and inflammatory bowel disease (IBD) completed questionnaires (n=283) to identify important outcomes. 1. HCPs from the Santeon hospitals were invited for an interview. Santeon is a collaboration of seven non-academic teaching hospitals that collectively strive to improve their care following the principles of value based healthcare. The inclusion criterion was: medical specialists and nurses who were part of a VI team and thus had experience with using outcome data for quality improvement and benchmarking. The exclusion criteria were: 1) HCPs from recently started VI teams with limited experience in outcome data collection and 2) HCPs who participated in the SHOUT study, as their perspectives might be influenced by their role in the study. Interview data is archived at St. Antonius hospital. 2. Patients with one of the following three health conditions, i.e., prostate cancer, lung cancer, and inflammatory bowel disease (IBD), were recruited via Dutch patient organizations and online forums (Crohn & Colitis NL, kanker.nl, Prostaatkanker Stichting, Longkanker NL, foundation DUOS). Patients were asked to rate the importance of aggregated outcomes on a 5-point Likert-scale. They were also asked whether they preferred merely being informed about the outcome or desired a discussion with their HCP about that outcome. The questionnaires incorporated outcomes that were collected by VI teams for quality improvement of the corresponding health condition. To check whether we had reached an inclusive group of patients with regard to health literacy, the three health literacy questions were added to the questionnaire.
The codebook is added as: codebook vragenlijst patientenvereniging REDCap.pdf
All data is only available in Dutch. All open text data has been removed from the dataset due to privacy restrictions
Data is available from repository upon reasonable request.