Free State HIV/AIDS Household Impact Study 2001-2004 - South Africa

Geographic coverage
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The survey was conducted in two local communities in the Free State province, one urban (Welkom) and one rural (Qwaqwa), in which the HIV/AIDS epidemic is particularly rife. Welkom and
Qwaqwa are situated in the Lejweleputswa and Thabo Mofutsanyane districts of the Free State province.

Analysis unit
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Households

Universe
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All memebers of the Household

Kind of data
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Sample survey data [ssd]

Sampling procedure
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The household impact of HIV/AIDS was assessed by means of a cohort study of households affected by the disease. The survey was conducted in two local communities in the Free State province, one urban (Welkom) and one rural (Qwaqwa), in which the HIV/AIDS epidemic is particularly rife. Welkom and Qwaqwa are situated in the Lejweleputswa and Thabo Mofutsanyane districts of the Free
State province.

Affected households were sampled purposively via NGOs and other organizations involved in AIDS counselling and care and at baseline included at least one person known to be HIV-positive or
known to have died from AIDS in the past six months. Informed consent was obtained from the infected individual(s) or their caregivers (in the case of minors). In order to explore the socio-economic impact on affected households of repeated occurrences of HIV/AIDS-related morbidity or mortality, a distinction is made between affected households in general and affected households that have
experienced morbidity or mortality more frequently. Non-affected households represent households living in close proximity to affected households. These households at baseline did not include persons suffering from tuberculosis or pneumonia. The incidence of morbidity and mortality is considerably higher in affected households.

Affected households were sampled purposively via NGOs and other organizations involved in AIDS counselling and care and at baseline included at least one person known to be HIV-positive or
known to have died from AIDS in the past six months. Informed consent was obtained from the infected individual(s) or their caregivers (in the case of minors). In order to explore the socio-economic impact on affected households of repeated occurrences of HIV/AIDS-related morbidity or mortality, a distinction is made between affected households in general and affected households that have
experienced morbidity or mortality more frequently. Non-affected households represent households living in close proximity to affected households. These households at baseline did not include persons suffering from tuberculosis or pneumonia. The incidence of morbidity and mortality is considerably higher in affected households.

Mode of data collection
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Face-to-face [f2f]

Research instrument
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Household Questionnaire

Response rate
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During the first wave of interviews a total of 404 interviews were conducted. During the second wave of data collection, interviews were conducted with 385 households, which translates into an attrition rate of 4.7% (19 households). During wave III, a total of 354 households were interviewed, with 31 households not being reinterviewed (7.7% of the original sample). In wave IV, 55 new households wererecruited into the study, with particular emphasis on an effort to recruit child-headed households into the survey insofar as the sample to date did not include any such households. During waves IV, V and VI a total of 3, 13 and 9 households respectively could not be re-interviewed.

The payment of a minimal participation fee (R150 per household per survey visit) to those households interviewed in each wave, following
the interview and distributed in the form of food parcels, contributed to ensuring sustainability of the sample over the three-year period. The dataset includes data for 331 households interviewed in each of the six rounds of interviews. In almost 90 percent of cases the reasons for attrition are related to migration, given that this study did not intend to follow those households that move outside of the two immediate
study areas, i.e. Welkom and Qwaqwa. In the majority of cases, attrition can be ascribed to the failure to establish the current whereabouts of the particular household during follow-up, while in a third of cases it could be established that the household had moved to another country, another province, or another town in the Free State province. Less than ten percent of households had refused to participate in subsequent waves. The reasons for attrition in the original sample illustrate the manner in which migration and the disintegration of households, which are important effects of the epidemic, can act to erode the sample population.

地理覆盖范围
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本次调查在自由州省的两个地方社区进行，一个城市社区（韦尔科姆）和一个乡村社区（夸夸），这两个地区HIV/AIDS疫情尤为严重。韦尔科姆和夸夸位于自由州省的莱朱韦莱普特萨和塔博·莫富图萨尼亚内区。
分析单元
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家庭单元

总体
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所有家庭成员

数据类型
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样本调查数据 [ssd]
抽样方法
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通过评估受HIV/AIDS影响家庭的队列研究，对HIV/AIDS在家庭中的影响进行了调查。调查在自由州省的两个地方社区进行，一个城市（韦尔科姆）和一个乡村（夸夸），这两个地区HIV/AIDS疫情尤为严重。韦尔科姆和夸夸位于自由州省的莱朱韦莱普特萨和塔博·莫富图萨尼亚内区。
受影响的家庭通过参与艾滋病咨询和护理的非政府组织和其他组织有目的地进行抽样，在基线时至少包括一名已知HIV阳性或在过去六个月内因艾滋病去世的人。从感染者本人或其监护人（在未成年人情况下）那里获得了知情同意。为了探讨HIV/AIDS相关发病或死亡反复发生对受影响家庭的社会经济影响，将受影响的家庭分为一般受影响家庭和更频繁经历发病或死亡事件的受影响家庭。非受影响家庭代表与受影响家庭生活接近的家庭。这些家庭在基线时未包括患有肺结核或肺炎的人员。受影响家庭的发病和死亡率显著高于非受影响家庭。
受影响的家庭通过参与艾滋病咨询和护理的非政府组织和其他组织有目的地进行抽样，在基线时至少包括一名已知HIV阳性或在过去六个月内因艾滋病去世的人。从感染者本人或其监护人（在未成年人情况下）那里获得了知情同意。为了探讨HIV/AIDS相关发病或死亡反复发生对受影响家庭的社会经济影响，将受影响的家庭分为一般受影响家庭和更频繁经历发病或死亡事件的受影响家庭。非受影响家庭代表与受影响家庭生活接近的家庭。这些家庭在基线时未包括患有肺结核或肺炎的人员。受影响家庭的发病和死亡率显著高于非受影响家庭。
数据收集方式
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面对面 [f2f]
研究工具
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家庭问卷
应答率
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在第一次访谈波次中，共进行了404次访谈。在第二次数据收集波次中，对385户家庭进行了访谈，这相当于4.7%的流失率（19户）。在第三次访谈波次中，共访谈了354户家庭，其中31户家庭未再次访谈（原始样本的7.7%）。在第四次访谈波次中，招募了55户新家庭进入研究，特别强调招募儿童主导的家庭参与调查，因为迄今为止的样本中不包括任何此类家庭。在第四次、第五次和第六次访谈波次中，分别有3、13和9户家庭无法再次访谈。
在每次访谈波次中，向受访家庭支付最低参与费用（每次访问150兰特），并在访谈后以食品包裹的形式发放，有助于确保在三年期间样本的可持续性。数据集包括每个六轮访谈中受访的331户家庭的数据。在近90%的情况下，流失的原因与迁移有关，因为这项研究并未打算追踪那些移出两个直接研究区域（即韦尔科姆和夸夸）的家庭。在大多数情况下，流失可以归因于在随访过程中未能确定特定家庭的当前位置，而在三分之一的案例中可以确定该家庭已迁往另一个国家、另一个省份或自由州省的另一个城镇。不到10%的家庭拒绝参与后续波次的访谈。原始样本中流失的原因说明了迁移和家庭解体（这些是疫情的重要影响）如何导致样本人群的侵蚀。