RAMEDIS

RAMEDIS appears to be offline as of 2025-07-17 The RAMEDIS system is a platform independent, web-based information system for rare metabolic diseases based on filed case reports. It was developed in close cooperation with clinical partners to allow them to collect information on rare metabolic diseases with extensive details, e.g. about occurring symptoms, laboratory findings, therapy and molecular data.

RAMEDIS系统是一款基于现场病例报告的独立于平台、基于网络的罕见代谢性疾病信息系统。该系统在紧密的临床合作伙伴合作下开发，旨在使合作伙伴能够收集关于罕见代谢性疾病的大量详细信息，例如关于出现的症状、实验室发现、治疗和分子数据。