Data underlying the publication: Developing a Digital Medication Adherence Intervention for and With Patients With Asthma and Low Health Literacy: Protocol for a Participatory Design Approach

This data repository contains the research data from the study: Developing a Digital Medication Adherence Intervention for and With Patients With Asthma and Low Health Literacy: Protocol for a Participatory Design Approach, which was carried out from February to September 2019.<br>The data collected in this study served to inform the development process of the eHealth intervention and generate insight into the value of the used participatory methods. The collection and analysis were structured around five stages of design thinking: empathize, define, ideate, prototype, and test, spanning two major iterative cycles. Specifically, it incorporated three participatory design activities suitable for individuals with low health literacy (LHL): co-constructing stories, experience prototype exhibition, and video prototype evaluation. The data set is organized into four phases, each containing various materials: Phase 1 includes the setup and insights from co-constructing stories, along with scenarios, story elements, and personas. Phase 2 features a "matrix of change" synthesizing previous findings. Phase 3 offers consent forms and interview questions, alongside visual concept presenters for the prototype exhibition. Finally, Phase 4 provides insights and materials from the video prototype evaluation, including interview questions, insights documentation, and interface screens for the video prototype.<br>The study protocol was cleared by the Ethical Committee of the Leiden University Medical Centre (approval number: P18.158). <br>

本数据集包含一项研究的科研数据，该研究主题为《面向哮喘合并健康素养低下患者的数字化用药依从性干预：参与式设计方法方案》，研究实施时间为2019年2月至9月。
本研究采集的数据用于支撑该数字化健康干预工具的开发流程，并为所用参与式方法的价值评估提供洞察。本次数据采集与分析围绕设计思维的五大阶段展开：共情（empathize）、定义（define）、构思（ideate）、原型制作（prototype）与测试（test），涵盖两大主要迭代循环。具体而言，研究纳入了三项适配健康素养低下（Low Health Literacy, LHL）人群的参与式设计活动：共同建构故事、体验原型展以及视频原型评估。
本数据集分为四个阶段，各阶段包含多类研究素材：第一阶段涵盖共同建构故事环节的筹备工作与相关洞察，同时包含情境脚本、故事元素与人物角色（persona）资料；第二阶段以整合既往研究结果的"变化矩阵（matrix of change）"为核心内容；第三阶段包含知情同意书、访谈问卷，以及原型展所用的视觉概念展示物料；最后，第四阶段涵盖视频原型评估的相关洞察与素材，包括访谈问卷、洞察文档以及视频原型的界面屏幕文件。
本研究方案已获得莱顿大学医学中心伦理委员会批准（批准号：P18.158）。