Search for Patient Engagement in Research

The Canadian Dataverse Repository2026-03-28 收录

患者参与研究

数据链接：

https://borealisdata.ca/dataset.xhtml?persistentId=doi:10.5683/SP3/NLQR1E 数据链接链接失效反馈

官方服务：

资源简介：

Boruff, Jill, 2023, "Search for Patient Engagement in Research", https://doi.org/10.5683/SP3/NLQR1E, Borealis, V3

创建时间：

2025-08-26

Exploring patient and public involvement in motor neuron disease research

患者参与研究

运动神经元疾病

Objectives: Patient and public involvement (PPI) is a relatively new practice whereby researchers involve patients and the public in the conduct of their research. The Sheffield Motor Neurone D

DataCite Commons2020-08-26 更新110

Monitoring of rheumatoid arthritis: a patient survey on disease insight and possible added value of an innovative inflammation monitoring device

关节炎管理

患者参与研究

A digital survey held by researchers of the University of Twente among a convenience sample of 408 patients with rheumatoid arthritis in the Netherlands in the period of June-August 2020. The survey c

NIAID Data Ecosystem50

PPI discussion forum researcher characteristics.

患者参与研究

医学研究论坛

PPI discussion forum researcher characteristics.

Figshare2019-05-14 更新40

Public involvement detail (N = 20).

患者参与研究

核心结局指标集

*COS had already been developed without patient input, so this work done to elicit patient opinion. ** Patient core set.

NIAID Data Ecosystem60

Development of a Patient-Directed Queries Network to Engage Patients and Prioritize Their Questions to Inform the Patient-Centered Outcomes Research Institute (PCORI) Research Agenda [Methods Study], United States, 2014-2020

患者参与研究

医疗研究议程设定

Research teams usually decide on research agendas, or issues and questions to study in research projects, even when community stakeholder organizations, or CSOs, such as healthcare networks and patien

Search for Patient Engagement in Research

资源简介：

相关数据集