Data supporting "Effects of facilitated family case conferencing for advanced dementia: A cluster randomised clinical"

This data from the IDEAL study, was used to compare the efficacy of a facilitated approach to family case conferencing with usual care and to evaluate quality of end of life (EOL) care for participants who died during the study period.

This collection contains 3 SPSS .sav files and a document which elaborates the significance of these files.

Dataset 1: IDEAL Nursing home descriptors N=20.sav
Baseline characteristics of the 20 nursing homes (refer Table 1, in associated PLOS One publication)

N.B. Table 1 Questionnaire on Palliative care for Advanced Dementia (qPAD) median scores by group calculated using staff level data in Dataset 2.

Dataset 2: IDEAL Staff qPAD baseline scores N=290.sav

Dataset 3: IDEAL Resident data N=131.sav
Contains
- baseline characteristics of the 131 residents (Table 1, in associated PLOS One publication)
- End of Life Outcomes (family-rated and nurse-rated) total scores and weeks to completion (Tables 2, 3 and 4, , in associated PLOS One publication)
N.B. there are more ‘time to completion’ data points than EOLD (End Of Life Dementia) scores since some EOLD responses were provided but unable to generate a valid total score.
- Case conference (whether or not resident received at least one case conference)
- Quality of Life in Late-stage Dementia (QUALID) data
- Symptoms and care during the last month of life (Table 5, in associated PLOS One publication)

本数据集源自IDEAL研究，用于对比协助式家庭病例讨论会与常规护理的临床疗效，并评估研究周期内去世受试者的临终（End of Life, EOL）照护质量。

本数据集包含3个SPSS格式的.sav文件与1份阐释上述文件研究意义的文档。

数据集1：IDEAL疗养院基线描述数据（N=20）.sav
包含20家疗养院的基线特征信息（详见关联PLOS One发表论文中的表1）。

备注：表1 晚期痴呆姑息治疗调查问卷（Questionnaire on Palliative care for Advanced Dementia, qPAD）的组间中位数得分，系通过数据集2中的员工层面数据计算所得。

数据集2：IDEAL员工qPAD基线得分数据（N=290）.sav

数据集3：IDEAL受试者（居民）数据（N=131）.sav
包含以下内容：
- 131名受试者（居民）的基线特征信息（详见关联PLOS One发表论文中的表1）
- 临终结局指标：家属与护士评估的总得分、指标完成所需周数（详见关联PLOS One发表论文中的表2、3、4）。
备注：由于部分临终痴呆（End Of Life Dementia, EOLD）评估虽已提交，但无法生成有效总得分，因此“完成所需时间”的数据点数量多于EOLD得分数量。
- 病例讨论会参与情况（受试者是否接受过至少1次病例讨论会）
- 晚期痴呆患者生活质量（Quality of Life in Late-stage Dementia, QUALID）数据
- 生命终末1个月的症状与照护情况（详见关联PLOS One发表论文中的表5）