Deception in research through partial disclosure: Exploring the Ethics Committee dilemma

The qualitative dataset titled "Deception in research through partial disclosure: Exploring the Ethics Committee dilemma" explores the ethical complexities surrounding the use of partial disclosure in human subjects research. Based on detailed interviews and thematic coding of responses from Ethics Committee (EC) members and stakeholders, the dataset captures diverse perspectives on when, why, and how partial disclosure is used, and the extent to which it is ethically permissible. Participants reflect on their awareness (or lack thereof) of the concepts of deception and partial disclosure, often conflating the two, and express uncertainty about their justifications and boundaries. The dataset reveals critical issues in informed consent processes, including miscommunication, incomplete disclosure, and the challenges of ensuring participant autonomy, particularly when vulnerable populations are involved. It also highlights institutional and operational challenges faced by ECs, such as time constraints, limited subject expertise, poor translation practices, and the difficulty of identifying unethical practices during protocol review. Additionally, it documents researchers' tendencies to prioritize scientific goals over participant welfare, sometimes engaging in misleading practices or failing to report adverse events or sample reuse. The data highlights the need for clearer guidelines, standard operating procedures (SOPs), and continuous ethical training for both researchers and EC members. Through rich verbatim quotes and layered coding, the dataset provides a nuanced understanding of how ethical dilemmas related to deception and partial disclosure unfold in real-world research oversight settings.本质性数据集题为《部分披露式研究中的欺骗行为：探究伦理委员会的困境》，聚焦人体受试者研究中使用部分披露手段所引发的伦理复杂性。本数据集基于对伦理委员会（Ethics Committee, EC）成员及利益相关方的深度访谈资料与响应内容的主题编码（thematic coding），全面收录了关于部分披露手段的使用时机、动因与实施方式，以及其伦理可接受程度的多元视角。参与者就自身对欺骗与部分披露概念的认知（或认知缺失）展开反思，不少人常将二者混淆，并对自身的论证依据与行为边界表达了不确定态度。该数据集揭示了知情同意（informed consent）流程中存在的诸多关键问题，包括沟通不畅、披露不完整，以及保障受试者自主性的现实挑战，尤其在涉及脆弱人群（vulnerable populations）的场景下，此类挑战更为突出。研究同时凸显了伦理委员会面临的制度与实操层面困境，例如审查时间紧张、专业专长匮乏、翻译流程失当，以及在研究方案审查阶段识别不端行为的难度较高。此外，数据集还记录了研究者倾向于将科学目标置于受试者福祉之上的行为倾向，部分研究者会采取误导性手段，或未如实报告不良事件与样本复用情况。本数据凸显了制定更清晰的伦理指南、标准操作规程（standard operating procedures, SOP），以及为研究者与伦理委员会成员提供持续伦理培训的必要性。通过丰富的逐字引述与分层编码，该数据集为理解欺骗与部分披露相关的伦理困境在真实世界研究监管场景中的具体表现提供了细致入微的洞察。