Cystic Fibrosis Telemedicine in the era of COVID-19 patient and staff surveys

The coronavirus disease 2019 (COVID-19) pandemic has resulted in large scale changes to incorporate telemedicine for delivery of care. People with cystic fibrosis (CF) have care considerations that pose challenges to telemedicine; they include frequent visits for pulmonary disease progression, medication management and evaluation by a multidisciplinary team of providers. We share our center’s experience with video visits replacing in-person clinic evaluation, using quality improvement strategies to create a replicable workflow. Key considerations include incorporation of the multidisciplinary team into the visit, limitations of remote delivery of care, as well as patient and staff perceptions of this care model. Results revealed that video visits were convenient, efficacious, and comparable to in-person visits with interest for its continued incorporation into the traditional CF care model.2019冠状病毒病（coronavirus disease 2019, COVID-19）大流行推动医疗服务领域发生大规模变革，远程医疗得以广泛融入临床诊疗流程。囊性纤维化（cystic fibrosis, CF）患者的诊疗需求给远程医疗的落地带来诸多挑战，此类需求包括因肺部疾病进展需频繁就诊、药物管理，以及多学科诊疗团队的评估工作。本文分享了本中心以视频问诊替代线下门诊评估的实践经验，通过质量改进策略构建了可复制的工作流程。该实践的核心考量要点包括：将多学科团队融入问诊环节、远程医疗服务的局限性，以及患者与医护人员对该诊疗模式的认知与评价。研究结果显示，视频问诊便捷高效、疗效确切，与线下门诊的诊疗效果相当，且该模式得到广泛认可，有望持续融入传统囊性纤维化诊疗体系。