Data from: Posttraumatic stress reactions in parents of children esophageal atresia.

Objective – The aim of this study was to investigate psychological stress in parents of children with esophageal atresia and to explore factors associated with the development of Posttraumatic Stress disorder (PTSD). Design - Self-report questionnaires were administered to parents of children with EA. Domains included: (1) sociodemographic data, current personal difficulties, assessment scales for the quality of life and for the global health status of the child (2) French-validated versions of the Perinatal Posttraumatic Stress disorder Questionnaire and of the State-Trait Anxiety Inventory. Associations between PTSD and severity of the neonatal course, presence of severe sequelae at 2 years of age, and quality of life and global health status of children according to their parents’ perception were studied. Setting – a Tertiary care University Hospital Results - Among 64 eligible families, 54 parents of 38 children (59%) participated to the study. PTSD was present in 32 (59%) parents; mothers were more frequently affected than fathers (69 vs 46%, p=0.03). Four mothers (8%) had severe anxiety. PTSD was neither associated with neonatal severity nor with severe sequelae at 2 years. Parents with PTSD rated their child’s quality of life and global health status significantly lower (7.5 vs 8.6; p=0.01 and 7.4 vs 8.3; p=0.02 respectively). Conclusions - PTSD is frequent in parents of children with esophageal atresia, independently of neonatal severity and presence of severe sequelae at 2 years of age. Our results highlight the need for a long-term psychological support of families.研究目的——本研究旨在探讨食管闭锁（esophageal atresia, EA）患儿父母的心理应激状况，并探索与创伤后应激障碍（Posttraumatic Stress Disorder, PTSD）发生相关的影响因素。 研究设计——本研究向食管闭锁患儿父母发放自陈式问卷，问卷涵盖以下维度：(1) 社会人口学资料、当前个人困境、患儿生活质量及总体健康状况评估量表；(2) 经过法语验证的围生期创伤后应激障碍问卷（Perinatal Posttraumatic Stress Disorder Questionnaire）及状态-特质焦虑量表（State-Trait Anxiety Inventory）。本研究分析了创伤后应激障碍与新生儿病程严重程度、患儿2岁时是否存在严重后遗症，以及父母感知到的患儿生活质量与总体健康状况之间的关联。 研究地点——某三级医疗大学附属医院。 研究结果——在64个符合纳入标准的家庭中，共有38名患儿的54名父母参与本研究，参与率为59%。其中32名父母（59%）符合创伤后应激障碍诊断；母亲的患病率显著高于父亲（69% vs 46%，p=0.03）。4名母亲（8%）存在重度焦虑症状。创伤后应激障碍的发生与新生儿病程严重程度及患儿2岁时的严重后遗症均无显著关联。存在创伤后应激障碍的父母对患儿生活质量及总体健康状况的评分显著更低（分别为7.5 vs 8.6，p=0.01；7.4 vs 8.3，p=0.02）。 研究结论——食管闭锁患儿父母的创伤后应激障碍患病率较高，且该状况与新生儿病程严重程度及患儿2岁时是否存在严重后遗症均无关联。本研究结果提示，需为相关家庭提供长期心理支持服务。