RDCRN Contact Registry

RDCRN Contact Registry是一个罕见疾病临床研究网络(RDCRN)的联系注册数据库，收集并存储希望参与RDCRN赞助研究或了解更多研究信息的个人联系方式。该数据库连接患者与研究人员，以推进罕见疾病研究，同时允许RDCRN及其附属联盟和患者宣传团体与感兴趣的患者共享研究信息。The RDCRN Contact Registry is a contact registration database under the Rare Disease Clinical Research Network (RDCRN). It collects and retains contact information of individuals who wish to participate in RDCRN-sponsored studies or obtain additional information about relevant research. This database connects patients with researchers to advance rare disease research efforts, while also enabling RDCRN, its affiliated alliances and patient advocacy groups to disseminate research information to interested patients.