Naastenspraak

During the corona pandemic, we examined four times how caregivers of people with an intellectual disability were doing. Topics included well-being, contacts, and care tasks. In this additional study, we ask the same caregivers to answer questions about four topics in their own words as much as possible. We examine whether caregivers (1) and their family members (2) have recovered and what effects they still experience from the corona measures. This knowledge contributes to improving crisis policy, aftercare in the event of crises and support for caregivers. We also examine if caregivers arrange future care (3) and whether they experience changes in the provision of information and participation by healthcare providers (4) after the pandemic. This knowledge contributes to issues of scarcity and cooperation with caregivers in care for people with disabilities. We will disseminate and discuss the results with caregivers, professionals, policy makers, healthcare providers and researchers.