ITHANET

This FAIRsharing record describes: The ITHANET Portal represents an expanding resource for clinicians and researchers dealing with haemoglobinopathies and a port of call for patients in search of professional advice. The ITHANET Portal integrates information on news, events, clinical trials and thalassaemia-related organisations, research projects and other scientific networks, wiki-based content of protocols, clinical guidelines and educational articles. Most importantly, disease-specific databases are developed and maintained on the ITHANET Portal, such as databases of haemoglobin variations (IthaGenes), epidemiology (IthaMaps) and HbF inducers (IthaDrugs).本FAIRsharing记录所描述的内容如下：ITHANET门户（ITHANET Portal）是一个持续扩容的资源平台，既为从事血红蛋白病（haemoglobinopathies）临床诊疗与研究工作的医护人员及科研人员提供资源支持，也为寻求专业咨询的患者搭建了专属咨询枢纽。该门户整合了多类信息资源：涵盖新闻动态、学术活动、临床试验项目、地中海贫血（thalassaemia）相关机构、科研课题及其他科学网络，同时包含基于维基协作的方案规程、临床指南与科普教育文章内容。尤为关键的是，ITHANET门户开发并维护了多款疾病专属数据库，例如血红蛋白变异数据库（IthaGenes）、流行病学数据库（IthaMaps）以及胎儿血红蛋白（HbF）诱导剂数据库（IthaDrugs）。