UK Renal Registry - CKD and AKI on Dialysis Dataset

The dataset contains patient-level data for adults under the care of NHS hospital kidney centres in the UK who have chronic kidney disease (CKD - mostly stages 4 and 5), as well as adults and children on kidney replacement therapy (KRT) for end-stage kidney disease (ESKD), and adults with an acute kidney injury (AKI) on dialysis at a kidney centre. The data are collected daily, quarterly or annually and include patient identifiable information, socio-demographic and clinical data. Since 2007 the UKRR has had 100% coverage of all people under the care of kidney centres in the UK on KRT and each year collects data on over 70,000 people on KRT. Coverage of people with CKD under the care of renal centres (excluding those on KRT) is lower - data collection commenced in 2016 and has increased from almost 17,000 adults recorded with CKD stages 4 and 5 up to the end of 2016, to more than 80,000 adults by the end of 2022. These numbers will continue to rise as more kidney centres submit data. In 2022 the UKRR received data from only 18 of the 67 UK adult kidney centres. In total, this dataset holds information on over 300,000 people on KRT or with advanced CKD. See here for further information: https://ukkidney.org/audit-research/data-permissions/data/ukrr-ckdaki-clinical-dataset.