遇见数据集

Illness episodes of clients of general practice participating in Nivel Care Registrations Eerste Lijn (01-01-2012-01-01-2018)

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This file contains diagnostic codes coded according to the International Classification of Primary Care-1 (ICPC-1) of persons registered with general practitioners participating in Nivel Care Registrations Eerste Lijn (NZR). These are diagnoses associated with illness episodes at the GP. A disease episode consists of one or more contacts with the GP for the same complaint or illness and indicates during which period the complaint or illness was present. Each record contains the diagnostic code of one disease episode, individuals may have multiple disease episodes in one year and thus occur several times in this file. These files can only be used within the CBS after the permission of Nivel, the use is associated with costs. External researchers can submit a data request via the Nivel website. After approval, Nivel will in most cases (for a fee) create a specific custom file that is focused on the research question. More information on how to access the data: > https://www.cbs.nl/nl-nl/onze-diensten/maatwerk-en-microdata/microdata-zelf-onderzoek-doen ### Methodology The data from this file is used in combination with the data from the NZRClient file, which contains the data on all enrolled patients with the NZR general practitioners. A disease episode (further called &episode ') is the period between the time a patient first comes to the GP with a complaint and the moment the disease is healed or the patient has died. In chronic diseases, an episode is not closed, but people continue to count for that diagnosis over the years until the patient dies. Episodes of diseases or conditions of which the patient can heal are automatically closed if there has been no contact with the GP for a specified period of time. This shutdown period varies by type of condition and varies between 4 weeks and 1 year after the last contact. The end date of the disease episode is then established on the date of last contact plus half of the cut-off period. There is no direct relationship between the number of episodes and the number of GP contacts of a person. An episode may consist of one or more contacts with the GP over a longer period of time, while during a contact with the GP several topics may be discussed that belong to different episodes. This file contains the episodes that were present in (part of) the reporting year with clients present in NZRClient. This stock also includes a high weight, with which the results of the episodes can be increased to the entire Dutch population. For each disease episode, the start and (estimated) end date are displayed. Because chronic diseases do not close the episode, disease episodes of chronic diseases do not have an end date. Additional data have also been included per disease episode, of which it has not been examined how reliable they have been recorded. These are the dates of the first and last contact and the number of contacts with the general practitioner in the context of this disease episode, and the dates of the first and last prescriptions and the number of prescriptions of medicines for this disease or condition. If a client was enrolled in a practice with assessable disease episodes, but there are no illness episodes of the client in this file, the client has not had any disease episodes in the year under review. ### Population Disease episodes constructed by Nivel from persons enrolled in general practice participating in Nivel Zorgregistrs Eerste Lijn (NZR).

本文件收录的诊断代码,是按照《国际基层医疗分类第1版(International Classification of Primary Care-1,ICPC-1)》,对参与Nivel基层医疗注册(Nivel Care Registrations Eerste Lijn,简称NZR)的全科医师所登记的患者进行编码所得。这些诊断与全科医师接诊的疾病病程相关。 疾病病程指患者因同一主诉或病症单次或多次前往全科医师处就诊的时间段,用于标识该主诉或病症的持续周期。每条记录对应一个疾病病程的诊断代码,个体在一年内可能存在多个疾病病程,因此会在本文件中多次出现。 本文件仅可在获得Nivel授权后于荷兰中央统计局(CBS)内部使用,且使用需支付相关费用。外部研究人员可通过Nivel官网提交数据申请。经审核通过后,Nivel多数情况下将(收取费用后)针对研究主题定制专属数据集。 如需了解更多数据获取方式,请访问: https://www.cbs.nl/nl-nl/onze-diensten/maatwerk-en-microdata/microdata-zelf-onderzoek-doen ### 研究方法 本文件数据需与NZRClient文件结合使用,后者包含了所有在NZR全科医师处登记的患者信息。 疾病病程(以下简称"病程")指患者首次因主诉前往全科医师处就诊,至疾病痊愈或患者死亡的时间段。对于慢性疾病,病程不会主动结束,患者将持续被纳入该诊断的统计周期直至死亡。对于可自愈的疾病或病症,若患者在指定时长内未再前往全科医师处就诊,则对应的病程将自动闭合。该闭合时长因病症类型而异,范围为末次接触后4周至1年不等。此时疾病病程的结束日期将被设定为末次接触日期加上该截止时长的一半。 个体的病程数量与全科医师接诊次数之间并无直接关联。一段病程可能涵盖较长时间内的多次就诊,而单次就诊中可能会讨论多个属于不同病程的健康问题。 本文件收录了报告年度(部分时段)内NZRClient中的患者所对应的病程。该数据集还包含了加权系数,可通过该系数将病程统计结果外推至全荷兰人口。 每条疾病病程均记录了起始日期与(估算的)结束日期。由于慢性疾病的病程不会自动闭合,因此慢性疾病的病程无结束日期。 本文件还为每条疾病病程补充了部分未验证记录可靠性的数据,包括本次病程的首次、末次就诊日期,就诊次数,以及针对该病症的首次、末次配药日期与配药次数。 若某患者在可评估病程的诊疗机构登记,但本文件中无其对应的疾病病程记录,则说明该患者在本次统计年度内未发生任何疾病病程。 ### 研究人群 本数据集的疾病病程由Nivel从参与Nivel基层医疗注册(Nivel Zorgregistrs Eerste Lijn,NZR)的全科医师所登记的患者中构建得到。

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