Babies? portal website ? hearing aid section: hearing impaired children parents? assessment

Purpose : to verify the self-assessment of knowledge of parents of hearing impaired children regarding hearing aids (HA) and earmolds and how the content of the “Babies´Portal – Hearing Section” website supported the understanding of such information.Methods : 22 parents (six men and 16 women, mean age 32,6 years) completed an anonymous online form available on the website with 36 questions about demographics, internet use and the guidance provided at the time of HA fitting. Also answered questions about the quality of website content.Results : on the fitting of hearing aids informational materials were provided only for 52,4% of parents, however, they were satisfied with the orientation. On average the helped provided by the website content was 86%. The score for satisfaction with the content and the website was related to the child’s age, duration of use of hearing aids and prior knowledge of parents about the topics on the hearing aid and ear mold.Conclusion : preliminary results indicate that the “Babies’ Portal” is an instrument that can help parents of hearing impaired children in the understanding of the guidance given at the time of HA fitting. The continuity of the study with a larger number of participants is required.

研究目的：验证听障儿童父母对助听器（hearing aids，HA）及耳模（earmolds）相关知识的自我评估情况，以及“婴儿门户-听力专区（Babies´Portal – Hearing Section）”网站内容对其理解此类信息的辅助作用。研究方法：招募22名家长（男性6名、女性16名，平均年龄32.6岁），填写该网站发布的匿名在线问卷，问卷包含36个问题，内容涉及人口统计学特征、互联网使用情况，以及助听器（HA）验配当时所获的指导信息；此外参与者还需回答关于网站内容质量的相关问题。研究结果：仅52.4%的家长在助听器验配环节获得了相关宣教资料，但他们对当时获取的指导均表示满意。平均而言，该网站内容提供的信息辅助程度达86%。家长对网站内容及平台的满意度评分，与儿童年龄、助听器使用时长，以及家长此前对助听器及耳模相关主题的认知水平显著相关。研究结论：初步结果表明，“婴儿门户-听力专区（Babies´Portal – Hearing Section）”网站可作为有效辅助工具，帮助听障儿童父母理解助听器验配时获得的相关指导信息。未来需扩大研究样本量，以推进该研究的后续开展。