Hidden Impact of Childhood Cancer on the Family: A Multi-Institutional Study in Bangladesh

The dataset has developed for the cross-sectional study conducted from January to June 2018 in three randomly selected tertiary hospitals. All the children diagnosed and treated at those hospitals during the study period were eligible for this study. Measures included socio-demographic attributes, financial burden, personal strain, social impact, mastery, and treatment cost. Face-to-face interview was conducted among 242 parents using a semi-structured questionnaire based on (i) About you and your-family and (ii) the Impact-On-Family scale. High scores of the scale correlated to high impact. Informed written consent was obtained from the parents.

本数据集系为2018年1月至6月于三家随机遴选的三级医院开展的横断面研究所构建。研究期间于上述医院接受诊断与治疗的所有儿童均符合本研究的纳入标准。本次研究的调查指标涵盖社会人口学特征、经济负担、个人压力、社会影响、掌控感以及治疗费用。研究采用基于(i) "About you and your family" 模块及(ii) 家庭影响量表（Impact-On-Family scale）的半结构化问卷，对242名患儿家长开展面对面访谈。该量表得分越高，提示家庭所受影响程度越大。所有家长均已签署书面知情同意书。