Myeloma and Related Diseases Registry

This observational study is collecting information from patients to form the Myeloma and Related Diseases Registry (MRDR)Who is it for?You may be eligible for this study if you have a diagnosis of multiple myeloma, plasmacytoma, plasma cell leukaemia or monoclonal gammopathy of undetermined significance (MGUS).Study detailsMedical information including diagnostic tests, therapy and demographics will be provided by medical records. Participants can also provide information regarding their quality of life using a questionnaire.It is hoped this registry will enable clinicians and hospitals to provide the best possible care to people with the included conditions and allow the evaluations of new therapies.

本项观察性研究正收集患者信息，以构建骨髓瘤及相关疾病登记库（Myeloma and Related Diseases Registry, MRDR）。
适用人群：若您被诊断为多发性骨髓瘤（multiple myeloma）、浆细胞瘤（plasmacytoma）、浆细胞白血病（plasma cell leukaemia）或意义未明单克隆丙种球蛋白病（monoclonal gammopathy of undetermined significance, MGUS），则可能符合本研究的入组条件。
研究详情：研究所需的医疗信息包括诊断检查、治疗方案及人口统计学资料，将从医疗记录中获取。参与者亦可通过填写问卷的方式，提供自身生活质量相关的信息。
本登记库旨在助力临床医师与医疗机构为上述疾病患者提供最优诊疗服务，并支持新型治疗方案的疗效评估。