Representações sociais sobre o retinoblastoma e o acompanhamento das crianças acometidas segundo familiares

Retinoblastoma is the most frequent malignant intraocular tumor in childhood. This study sought to understand the social representations of retinoblastoma according to family members with children affected by cancer. The representations were heterogeneous, addressing the meanings of the disease and the experience of living with cancer in the clinical and family context. Understanding these findings is important for the provision of comprehensive, interdisciplinary, quality, child and family-centered cancer care.