Open Data Training Workshop: Tri-Agency Research Data Management and Ethical Considerations of Open Data Sharing

Objective(s): Momentum for open access to research is growing. Funding agencies and publishers are increasingly requiring researchers make their data and research outputs open and publicly available. However, this introduces many challenges, especially when managing potentially sensitive clinical data. The aim of this 1 hr virtual workshop is to provide participants with foundational knowledge that supports planning for open data in future research projects. Specifically, participants will: 1. Gain an understanding of the new Tri-Agency Research Data Management policy and the analogous progress of the University of British Columbia's (UBC) Research Data Management (RDM) strategy and how they can be applied. 2. Gain an understanding of the ethical, privacy, and legal considerations of sharing data. 3. Learn practical skills for incorporating open data language into REB applications and consent form. Workshop Agenda: 1. \"Becoming familiar with the new Tri-Agency Research Data Management Policy\" - Speaker: Eugene Barsky, Research Data Librarian, UBC Library 2. \"Ethics and Practical Considerations of Open Data Sharing.\" - Speaker: Brittney Schichter, Director, Research Integration & Innovation, Provincial Health Service Authority (PHSA) Research and Academic Services This workshop draws on work supported by the Digital Research Alliance of Canada. Data Description: Presentation slides, Workshop Video, and Workshop Communication Eugene Barksy: Tri-Agency Research Data Management Policy presentation and accompanying PowerPoint slides. Brittney Schichter: Ethics and Practical Considerations of Open Data Sharing presentation and accompanying Powerpoint slides. This workshop was developed as part of Dr. Ansermino's Data Champions Pilot Project supported by the Digital Research Alliance of Canada., NOTE for restricted files: If you are not yet a CoLab member, please complete our membership application survey to gain access to restricted files within 2 business days. Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator on this page under \"collaborate with the pediatric sepsis colab.\"

【目标】推动科研开放获取的势头日益强劲。各类资助机构与出版机构正逐步要求研究人员将其数据及科研成果开放并公开发布。但这一趋势也带来诸多挑战，在处理潜在敏感临床数据时尤为突出。本次时长1小时的线上工作坊旨在为参与者提供基础认知，助力其规划未来科研项目中的开放数据工作。

具体而言，参与者将达成以下学习目标：1. 了解全新的三机构研究数据管理（Tri-Agency Research Data Management）政策，以及不列颠哥伦比亚大学（UBC）研究数据管理（RDM）战略的类似进展与落地应用方式；2. 掌握数据共享涉及的伦理、隐私与法律考量要点；3. 学习将开放数据相关表述纳入研究伦理委员会（REB）申请及知情同意书的实用技巧。

【工作坊议程】1. "初识全新三机构研究数据管理政策"——主讲人：尤金·巴尔斯基（Eugene Barsky），不列颠哥伦比亚大学图书馆研究数据馆员；2. "开放数据共享的伦理与实践考量"——主讲人：布里特尼·席希特（Brittney Schichter），省卫生服务局（PHSA）研究与学术服务部研究整合与创新总监。

本工作坊依托加拿大数字研究联盟（Digital Research Alliance of Canada）支持的相关研究成果开发。

【数据说明】包含演示幻灯片、工作坊视频及工作坊沟通材料。尤金·巴尔斯基（Eugene Barksy）：三机构研究数据管理政策演示文稿及配套PowerPoint幻灯片；布里特尼·席希特（Brittney Schichter）：开放数据共享的伦理与实践考量演示文稿及配套PowerPoint幻灯片。本工作坊是安瑟米诺博士（Dr. Ansermino）数据倡导者试点项目的组成部分，由加拿大数字研究联盟提供支持。

【受限文件说明】若您尚未成为协作实验室（CoLab）成员，请在2个工作日内完成会员申请调研，以获取受限文件的访问权限。部分文件仅对CoLab成员开放。此类文件因被文件所有者判定为敏感性更高，将按个案审核的方式共享。如需联系CoLab协调员，请访问本页面中"与儿童脓毒症协作实验室开展协作"板块。