Barriers to home exercise for patients with Parkinson’s disease – a qualitative study

Objective: This study aimed to explore the barriers to home exercise for patients with Parkinson’s disease (PwPDs) and provide guidelines for healthcare providers (HcPs) to build and implement home exercise strategies for PwPDs. Design: A qualitative descriptive method was used. Semi-structured interviews were conducted and thematic analysis was employed. Setting: The study was conducted in the Department of Neurology at a Grade 3 Class A general hospital in China. Participants: A total of 22 participants were interviewed, including 10 PwPDs, seven caregivers, two nurses, one head nurse, and two Parkinson's clinicians. Results: Five themes were identified in this analysis. (1) Psychosomatic stress and low activity; (2) lack of early rehabilitation authorisation; (3) poor "flow" state of home exercise; (4) inaccessibility of continued service; (5) sociocultural impact on family coping. Conclusion: PwPDs, caregivers, and specialised medical staff raised the challenges faced by patients' home exercises from different perspectives. Interventions can improve services and integrate resources through the management of multi-disciplinary, early rehabilitation authorisation, exercise experience, continuous service mode, and family coping strategies under different cultures to gradually adjust the home exercise behaviour of PwPDs.