Quality of life assessment following cytoreductive surgery (CRS) and hyperthermic intraperitoneal chemotherapy (HIPEC) for appendiceal neoplasms and malignancies: electronic patient related outcome measurements (ePROMs)

This data forms the basis of a currently unpublished original research article assessing the quality of life of appendiceal neoplasm patients following cytoreductive surgery with heated intraperitoneal chemotherapy (CRS&HIPEC). Quality of life data and symptom specific questions were routinely collected before outpatient appointments as part of an electronic patient recorded outcome measures (ePROMs) iniative. Within the scope of the research article, the authors assessed the QoL using the EuroQoL-5D tool, however this dataset also includes specific symptom reporting such as nausea, vomiting, sexual dysfunction etc.. Patient characteristics such as sex, age, PCI, CC score and time since surgery were extracted from electronic patient records and have been anonymized where necessary for publication. The host instituition and authors have been kept anonymous to maintain a double-anonymized peer review process.本数据集为一篇尚未发表的原创研究论文的核心支撑数据，该研究旨在评估阑尾肿瘤（appendiceal neoplasm）患者接受肿瘤细胞减灭术联合腹腔热灌注化疗（CRS&HIPEC）后的生活质量。作为电子患者报告结局指标（ePROMs）计划的组成部分，研究团队在患者门诊复诊前常规采集其生活质量数据及特异性症状相关问卷结果。 在该研究论文的既定研究范畴内，作者采用欧洲五维健康量表（EuroQoL-5D）对患者的生活质量进行了评估，但本数据集还额外涵盖了恶心、呕吐、性功能障碍等特异性症状的报告数据。研究人员从电子病历系统中提取了患者的性别、年龄、腹膜癌指数（Peritoneal Cancer Index, PCI）、CC评分（CC score）以及术后时长等临床特征信息，并根据出版规范对相关内容进行了必要的匿名化处理。 为保障双盲同行评议（double-anonymized peer review）流程的合规性，本研究的主办机构及作者信息均已完成匿名化处理。