Defining the user needs for an assistive paediatric hand exoskeleton: An Italian explorative survey

This dataset contains responses from an anonymous survey distributed via email between April 2024 and July 2024 to parents of children with neurological disorders who had previously received treatment at the Scientific Institute IRCCS E. Medea – Associazione “La Nostra Famiglia” in Bosisio Parini, Italy. During this period, a reminder was sent to all subscribers of the mailing list. Participation was restricted to parents of children with upper-limb impairments. All parents had previously provided consent to be recontacted via email, and the survey invitation included a link to our data processing policy in compliance with GDPR. The aim of the survey was to explore end-user needs and design requirements for pediatric hand exoskeletons. In particular, the questionnaire focused on functional assistance requirements for potential end users, with special attention to mobility, reaching, and handling tasks relevant to daily activities at home and in the broader community. The list of questions of the survey is available in the appendix of the paper " Defining the user needs for an assistive paediatric hand exoskeleton: An Italian explorative survey", submitted to "Assistive Technology"本数据集收录了2024年4月至7月间通过电子邮件发放的匿名调研问卷回复，调研对象为此前在意大利博西奥帕里尼的IRCCS E.梅代亚科学研究所——“我们的家庭”协会接受治疗的神经系统疾病儿童的家长。调研期间，发起方向邮件列表的所有订阅者发送了调研提醒。本次调研的参与资格仅限上肢功能障碍儿童的家长，所有潜在参与者此前均已同意可通过电子邮件再次联系，且调研邀请邮件中附带了符合《通用数据保护条例（General Data Protection Regulation）》的数据处理政策链接。 本次调研的核心目标为探索儿童手部外骨骼（pediatric hand exoskeletons）的终端用户需求与设计要求。具体而言，问卷聚焦于潜在终端用户的功能辅助需求，重点关注家庭及社区日常活动中涉及的移动、伸手抓取与物品操作等相关任务的需求。 本次调研的问卷题目清单已收录于提交至《辅助技术（Assistive Technology）》期刊的论文《定义辅助式儿童手部外骨骼的用户需求：一项意大利探索性调研》的附录中。