Pain-centered organization of symptom language differs between interstitial cystitis/bladder pain syndrome and fibromyalgia
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This deposition contains two disease-specific corpora of patient-generated languagerelated to interstitial cystitis/bladder pain syndrome and fibromyalgia. The texts were collected from publicly accessible Reddit communities.All posts were authored under highly pseudonymous handles, and no real-world identifiers,demographic attributes, or personal metadata were collected, inferred, or retained. At the time of data collection and deposition, the texts do not permit identificationof individual authors, including by self-identification.Accordingly, the corpora were treated as anonymized public data and are releasedunder open access for research use.
本数据集存档包含两个针对特定疾病的语料库,均为患者生成的与间质性膀胱炎/膀胱疼痛综合征(interstitial cystitis/bladder pain syndrome)及纤维肌痛(fibromyalgia)相关的语言文本。 上述文本均采集自公开可访问的Reddit社区。所有帖子均以高度匿名的账号发布,采集过程中未收集、推断或留存任何真实身份标识、人口统计学属性或个人元数据。 在数据采集与存档阶段,即便通过自我标识的方式,也无法通过这些文本识别出单个作者的身份。 因此,该语料库被视为已完成匿名化的公开数据,以开放获取的形式发布以供科研使用。



