遇见数据集

Example of categorization.

收藏
Figshare2024-12-02 更新2026-04-28 收录
官方服务:

资源简介:

IntroductionNocturnal enuresis is a very common and socially distressing condition among children. There are qualitative studies published in children with bowel and bladder problems with a focus on health-related quality of life and the burden of the condition, but there is a lack of knowledge of the experience of managing the treatment procedures at home. From a clinical viewpoint, it can be assumed that the procedures entail a lot of work and have an impact on everyday life apart from the disorders per se, but the actual voices of the children have not been heard.PurposeTo explore children’s and their parents’ experiences of labor-intensive procedures in the management of enuresis.Design and methodsA qualitative interview study. Semi-structured interviews were held with fourteen children with enuresis six to nine years of age, together with their parents in Sweden between April 2020 and February 2021. Data were analyzed inductively with qualitative content analysis.ResultsThe major findings showed both favorable strategies and challenges in labor-intensive management. The results are described in four categories: 1) experiences of how to manage; 2) managing procedures was a favorable experience; 3) managing procedures made it complicated and 4) problematic to remember.ConclusionManaging the treatment of enuresis at home can be challenging. There were procedures that children did not like and new routines that were difficult to remember. However, the study can suggest strategies in how to manage and overcome these difficulties.

引言 夜间遗尿症(Nocturnal enuresis)是儿童群体中极为常见且会引发社交困扰的疾病。目前已有针对儿童肠膀胱功能障碍的定性研究(qualitative study),聚焦于健康相关生活质量(health-related quality of life)与该疾病的负担,但针对居家治疗流程的管理体验仍缺乏相关认知。从临床视角来看,可推测该治疗流程不仅会带来繁重的工作负担,还会在疾病本身之外对患儿日常生活造成影响,但迄今为止尚未真正倾听过儿童自身的真实心声。 研究目的 探究儿童及其家长在遗尿症高负荷治疗流程中的管理体验。 研究设计与方法 本研究为定性访谈研究(qualitative interview study)。2020年4月至2021年2月期间,在瑞典对14名6至9岁的遗尿症儿童及其家长开展半结构化访谈(semi-structured interviews)。采用定性内容分析法(qualitative content analysis)对数据进行归纳式分析。 研究结果 主要发现显示,高负荷治疗流程中同时存在可取策略与挑战。研究结果可归纳为四大类别:1)治疗管理方式的相关体验;2)治疗流程管理为正向体验;3)治疗流程管理带来诸多复杂性;4)流程记忆存在困难。 研究结论 居家开展遗尿症治疗存在诸多挑战。部分治疗流程不受儿童喜爱,且新建立的日常治疗习惯难以记忆。不过本研究可为应对此类困难的管理策略提供参考方向。

创建时间:
2024-12-02
二维码
社区交流群
二维码
科研交流群
商业服务