Family quality of life in Neurodegenerative Diseases and associated factors

This database was developed in a study of 300 family members of patients with Neurodegenerative Diseases (NDs), living in the cross-border region of Spain-Portugal, mostly in rural areas (70% females, mean age: 62.4). The majority were primary caregivers. Data were collected from October 2019 to July 2020 through a survey administered via telephone. Concretely, the FQOLS–ND examined how the family perceived its quality of life at the global and domain-level, in terms of attainment and satisfaction. It also collected data on diverse sociodemographic, family, and social-health factors. The survey is available at: http://hdl.handle.net/10366/145788.