Serious health-related suffering among children aged 0-19 years from 1990-2023

The need for PC palliative care for children, globally and particularly in low- and middle-income countries (LMICs), is largely unmet and results in an excess burden of suffering. This data set provides estimates for the global burden of serious health-related suffering (SHS) among children and adolescents (0-19 years) from 1990 to 2023, providing a measurement tool essential to respond to the need for more effective palliative care PC policies and services for children. We generate refined estimates of PC need for children aged 0 to 19 by extending and applying the SHS methodology originally published by The Lancet Commission on Global Access to Palliative Care and Pain Relief and updated in 2024. This updated methods and data included convening an expert paediatric PC panel that identified the health conditions specific to children and adolescents and related parameters for estimation. Our estimates are anchored in the Global Burden of Disease study (2023) dataset and cover 1990 to 2023. The evaluation of the data set has been published in the Lancet Pediatrics, Child and Adolescent Health:

儿童姑息治疗（palliative care, PC）的全球需求，尤其是在中低收入国家（low- and middle-income countries, 简称LMICs）中，长期未得到充分满足，由此造成了过量的痛苦负担。本数据集提供了1990年至2023年间0至19岁儿童与青少年群体的全球严重健康相关痛苦（serious health-related suffering, SHS）负担估算值，可为响应儿童姑息治疗更高效的政策与服务需求提供不可或缺的评估工具。本研究通过扩展并应用《柳叶刀全球姑息治疗与疼痛缓解委员会》最初发布、并于2024年更新的严重健康相关痛苦评估方法，对0至19岁儿童的姑息治疗需求生成了精细化估算结果。此次更新的方法与数据涵盖了组建儿科姑息治疗专家小组的工作，该小组明确了针对儿童与青少年的特定健康状况及相关评估参数。本研究的估算结果依托2023年全球疾病负担（Global Burden of Disease study）研究数据集，时间覆盖范围为1990年至2023年。本数据集的相关评估已发表于《柳叶刀·儿科与儿童青少年健康》（Lancet Pediatrics, Child and Adolescent Health）：