Database DYMUS-PD_Dagna_avenali

In this paper, we reported DYMUS (Dysphagia in Multiple Sclerosis) and the EAT-10( Eating Assessment Tool) questionnaires score from patients and caregivers. DYMUS is composed by 10 items, all the answers are dichotomous, coded as 1 or 0, depending on the presence or absence of the event (range of score: 0–10; higher = worse). EAT-10 is a clinical scale used to document dysphagia symptoms severity in patients with swallowing disorders. EAT-10 includes 10 questions, each scored from 0 to 4 (“no problem” to “severe problem”); the total score is calculated by adding the scores of each question, with a higher score indicating higher self-perceived dysphagia severity. For the comparison of DYMUS with fiber-optic endoscopic evaluation (FEES), patients underwent the instrumental evaluation. Based on FEES findings, dysphagia severity was rated according to the Dysphagia Outcome Severity Scale (DOSS). This database includes the raw data of Hoehn & Yahr staging system, MDS-Unified Parkinson’s Disease Rating Scale part 3, disease duration and MMSE (Mini-Mental State Examination) of each patient.本研究报道了来自患者与照料者的DYMUS（多发性硬化吞咽障碍，Dysphagia in Multiple Sclerosis）与EAT-10（进食评估工具，Eating Assessment Tool）问卷得分。DYMUS共包含10个条目，所有答案均为二分变量，以1或0编码，对应某一事件的发生与否；得分范围为0~10，得分越高表示症状越严重。EAT-10是一款用于评估吞咽障碍患者吞咽困难症状严重程度的临床量表。该量表共包含10个问题，每个问题的评分范围为0~4分（“无任何问题”至“严重问题”）；总得分通过累加各条目得分得到，得分越高提示患者自我感知的吞咽困难严重程度越高。为对比DYMUS与纤维光学内镜评估（fiber-optic endoscopic evaluation, FEES）的效能，本研究对所有患者实施了器械检查。基于FEES的检查结果，研究人员根据吞咽障碍结局严重度量表（Dysphagia Outcome Severity Scale, DOSS）对患者的吞咽困难严重程度进行分级。本数据集包含所有患者的霍恩-雅尔（Hoehn & Yahr）分期系统数据、运动障碍学会统一帕金森病评定量表第三部分（MDS-Unified Parkinson’s Disease Rating Scale part 3）得分、病程时长以及MMSE（简易精神状态检查，Mini-Mental State Examination）原始数据。