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Supplementary information files for "Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines"

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DataCite Commons2026-01-16 更新2026-05-03 收录
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https://repository.lboro.ac.uk/articles/dataset/Supplementary_information_files_for_Conducting_ethical_co-produced_research_with_autistic_individuals_with_an_eating_disorder_best_practice_guidelines_/31078873/1
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Supplementary files for article "Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines"<br><br>There is a notable overlap between autism and eating disorders (EDs), and autistic individuals may experience poorer ED treatment outcomes than non-autistic peers. To make meaningful change in this field, it is imperative that we actively engage in co-production of research, however there are currently no guidelines to support co-production with autistic people with eating disorders. This paper reports on best practice guidelines that were co-produced across a series of workshops bringing together autistic people with EDs, researchers, clinicians, third-sector organisations, and parents/carers. The guidelines are intended to be used as a foundation for future co-produced autism and ED research. By creating a trusted, ethical co-production relationship, we hope to generate more clinically meaningful and translatable research.<br><br>© The Author(s), CC BY-NC-ND 4.0

论文《与进食障碍(Eating Disorders, EDs)自闭症个体开展符合伦理的合作式研究:最佳实践指南》的补充材料 自闭症与进食障碍(Eating Disorders, EDs)存在显著共病关联,自闭症个体的进食障碍治疗结局往往劣于非自闭症同龄人。为推动该领域实现实质性进展,我们必须积极开展合作式研究,但目前尚无针对与进食障碍自闭症个体开展合作式研究的指导规范。本文介绍了通过一系列工作坊共同制定的最佳实践指南,参与工作坊的人员包括进食障碍自闭症个体、研究人员、临床医师、第三部门组织代表以及家长/照料者。本指南旨在为未来自闭症与进食障碍领域的合作式研究提供基础框架。通过构建可信且符合伦理的合作研究关系,我们期望产出更具临床意义且可转化的研究成果。 © 作者,知识共享署名-非商业性使用-禁止演绎 4.0 国际许可协议(CC BY-NC-ND 4.0)
提供机构:
Loughborough University
创建时间:
2026-01-16
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