Brain Malformations self-reported surveys

Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.本数据集收录受试者及其照料者在基线（检测前）与随访（检测后）调研中，针对基因组检测（genomic testing）的认知水平、预期诉求与实际体验相关数据。此类数据均由受试者本人或其照料者自行报告所得。