Leukodystrophies self-reported surveys
收藏DataCite Commons2020-09-22 更新2025-04-17 收录
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https://melbourne.figshare.com/articles/Leukodystrophies_self-reported_surveys/12479405/1
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资源简介:
Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
本数据集收录受试者及其照料者在基线(检测前,pre-test)与随访(检测后,post-test)调查问卷中所反映的对基因组检测(genomic testing)的认知、预期与体验。此类数据均由受试者或其照料者自行报告。
提供机构:
University of Melbourne
创建时间:
2020-06-25



