Assessing autonomy in visually impaired children and adolescents: Validation of the Visual Impairment Developmental Autonomy (VIDA) scale

This database includes the raw data linked with the paper “Assessing autonomy in visually impaired children and adolescents: Validation of the Visual Impairment Developmental Autonomy (VIDA) scale” under review on Developmental Medicine & Child Neurology. In this study, we reported the validation stage of the VIDA scale: a PROM questionnaire to assess the autonomy level of children with visual impairment (VI). Procedures A final sample of 110 of parents and 18 adolescents actively participated in the study, providing complete responses to the questionnaires. Participants were requested to complete online the following: a) a form containing socio-demographic information, b) the VIDA scale, c) a questionnaire on QoL for convergent validity (the TNO-AZL Preschool Children Quality of Life (TAPQOL) or the TNO AZL Children's Quality of Life (TACQoOL). Analytical plan The primary outcome measures included internal consistency, convergent validity, cross-informant concordance, and descriptive statistics of autonomy profiles across three age groups. Internal consistency was assessed using Cronbach’s Alpha coefficient. Convergent validity was evaluated against established measures such as the Children’s Quality of Life questionnaire (TACQOL) and the Preschool Children’s Quality of Life questionnaire (TAPQOL) using bivariate Pearson’s correlation indexes. Findings in brief Internal consistency coefficients ranged between .708 and .938 across all subscales and age versions of the instrument. The VIDA subscales showed consistent correlations with comparable dimensions of the TACQOL/TAPQOL (correlations index >0.3). The cross-informant concordance was significant with weak-to-moderate effect sizes. Descriptive statistics showed different profiles of autonomy in the three age groups: clothing and orientation/mobility emerged as areas of vulnerability for adolescents. Visual acuity was significantly correlated with many VIDA scores, whereas no significant associations emerged with the quality of life.本数据库包含与已投稿至《发育医学与儿童神经病学》（Developmental Medicine & Child Neurology）待审论文《评估视障儿童与青少年的自主性：视障发育自主性（Visual Impairment Developmental Autonomy, VIDA）量表的验证》相关的原始数据。本研究报告了VIDA量表的验证工作阶段：该量表是一款用于评估视觉障碍（Visual Impairment, VI）儿童青少年自主性水平的患者报告结局（Patient-Reported Outcome, PROM）问卷。 ## 研究流程 最终纳入110名家长与18名青少年作为有效研究参与者，所有对象均完成了全部问卷作答。参与者需在线完成以下内容：a) 社会人口学信息调查问卷；b) VIDA量表；c) 用于聚合效度检验的生活质量问卷，即荷兰特文特大学-阿姆斯特丹大学学龄前儿童生活质量量表（TNO-AZL Preschool Children Quality of Life, TAPQOL）或荷兰特文特大学-阿姆斯特丹大学儿童生活质量量表（TNO AZL Children's Quality of Life, TACQoOL）。 ## 分析方案 主要结局指标包括内部一致性、聚合效度、跨报告者一致性，以及三个年龄组自主性特征的描述性统计分析。内部一致性采用克朗巴赫α系数（Cronbach’s Alpha coefficient）进行评估。聚合效度则通过双变量皮尔逊相关系数，与已验证的儿童生活质量问卷（TACQOL）及学龄前儿童生活质量问卷（TAPQOL）进行对比验证。 ## 研究结果概要 该量表所有分量表及不同年龄版本的内部一致性系数介于0.708至0.938之间。VIDA量表各分量表与TACQOL/TAPQOL的对应维度呈现显著相关（相关系数>0.3）。跨报告者一致性具有统计学意义，效应量为弱至中等水平。描述性统计结果显示，三个年龄组的自主性特征存在显著差异：穿衣能力与定向/移动能力为青少年群体的自主性薄弱环节。视敏度与多数VIDA量表得分呈显著相关，但未发现其与生活质量存在显著关联。