Juliët Beuken - PhD project data for study 2

<B>Study Title</B><BR><BR>
Out of sight, out of mind? A qualitative study of patients' perspectives on cross-border healthcare in a European border region.<BR><BR>
<B>Study Description</B><BR><BR>
The main research question of this study was: ‘What are the perspectives of patients who have experienced cross-border healthcare and, more specifically, handover in a European border region?’<BR><BR>
We conducted eight interviews with nine people. One interview also included the patient’s relative. All interviews lasted about one hour. During the first interview, we noticed that it would be meaningful to have an observer who could ask clarifying questions. Therefore, from the second interview onwards, another research team member (MB or DV) was also present who had an observing role. JB was the main interviewer who introduced the topic and asked questions in each phase. Interviews were held in English or Dutch, whichever language the patient preferred. Two participants were interviewed in a language that was not their native tongue. All interviews were recorded with an audio recorder. All interviews were transcribed verbatim by the researchers (JB or MB). After that, we sent the transcripts to the participants for a member check.<BR><BR>
The main conclusion was that challenges of cross-border healthcare for patients, albeit no novelty in healthcare, seem to be amplified by cross-border barriers, such as system, language, and cultural differences. To empower patients to be involved in their own healthcare process, these issues should become a topic of conversation between patients and healthcare professionals.<BR><BR>
<B>Description of Data</B><BR><BR>
Type: Verbatim transcribed narrative interviews. <BR><BR>
Participant: Patients in cross-border care (N=9.) <BR><BR>
Language: English and Dutch.

<B>研究标题</B><BR><BR>「眼不见，心不烦」？欧洲边境地区跨境医疗患者视角的质性研究（qualitative study）<BR><BR><B>研究概况</B><BR><BR>本研究的核心研究问题为：「曾在欧洲边境地区接受跨境医疗服务，尤其是医疗交接服务的患者，其视角为何？」<BR><BR>本研究共开展8次访谈，纳入9名受访对象，其中1次访谈邀请患者家属一同参与。所有访谈时长均约1小时。首轮访谈后，研究团队发现增设1名可提出澄清性问题的观察员将有效优化研究流程，因此自第二轮访谈起，另有1名团队成员（MB或DV）以观察员身份参与访谈。JB为首席访谈员，负责在各访谈阶段引入主题并提出问题。访谈采用英语或荷兰语开展，由受访患者自主选择语言；其中2名受访对象使用非母语完成访谈。所有访谈均通过录音设备录制，转录工作由研究人员（JB或MB）逐字完成。转录完成后，研究团队将转录文本发送给受访患者进行成员校验（member check）。<BR><BR>本研究核心结论显示：尽管患者在跨境医疗中面临的挑战并非医疗领域的新鲜议题，但跨境壁垒（如制度、语言与文化差异）会进一步放大此类挑战。为助力患者参与自身医疗决策流程，此类问题应成为患者与医疗专业人员之间的常态化沟通议题。<BR><BR><B>数据说明</B><BR><BR>数据类型：逐字转录的叙事访谈资料<BR><BR>受访对象：跨境医疗服务使用者（N=9）<BR><BR>访谈语言：英语与荷兰语。