DataSheet1_Navigating HIV-Related Stigma in Switzerland: A Qualitative Study.pdf

Objectives: This study sought to understand how people living with HIV experience, perceive, and navigate stigma in their everyday life and in care settings in an urban French-speaking area in Switzerland. Methods: Semi-structured interviews were carried out with 19 people living with HIV in Lausanne concerning their experience of HIV-related stigma in both everyday life and in healthcare settings. Content analysis was performed to identify main and sub-themes. Results: “Living with HIV” posed little or no difficulty for participants. However, the burden of anticipated and internalized HIV-related stigma played a disproportionately large role in their lives. Participants considered the general population’s low level of knowledge about HIV as problematic in this regard. While participants reported few examples of enacted stigma generally, healthcare environments were sometimes experienced as sites of prejudice and discrimination. However, some healthcare professionals were also sources of information and knowledge, contributing to participants’ “journeys of self-acceptance.” Conclusion: Even in an urban environment in a country with ready access to healthcare and education, HIV-related stigma remains a concern for people living with HIV.研究目的：本研究旨在探究瑞士法语城区的HIV感染者（people living with HIV）在日常生活与医疗照护场景中，如何体验、认知并应对污名（stigma）相关问题。 研究方法：本研究对瑞士洛桑的19名HIV感染者开展半结构化访谈，访谈内容覆盖其在日常生活及医疗场景中遭遇的HIV相关污名（HIV-related stigma）；随后通过内容分析法，识别核心主题与子主题。 研究结果：“与HIV共存”对多数参与者而言几乎未构成显著困难，但预期性污名与内化性HIV相关污名所带来的负担，却在其生活中占据了远超其应有的比重。参与者普遍认为，普通大众对HIV的认知水平偏低是该问题的关键诱因。尽管参与者自述鲜有公开显现的污名化案例，但医疗环境有时仍会成为偏见与歧视的滋生场景。不过，部分医护人员也能为参与者提供专业信息与知识支持，助力其完成“自我接纳之旅”。 研究结论：即便在医疗与教育资源充足的城市环境中，HIV相关污名仍是HIV感染者面临的核心关切。