Data_Sheet_1_Interventions and strategies to improve social support for caregivers of children with chronic diseases: An umbrella review.docx

BackgroundSocial support is an important approach to improve the psychosocial health status and promote positive coping for caregivers of children with chronic diseases. Such an approach can reduce parenting stress, help resolve parenting difficulties through the use of various social support relationships.
MethodsWe performed an umbrella review methodology using the method of examination, analysis and synthesis of systematic reviews. A PRISMA flow diagram was used to show the search process. The Joanna Briggs Institute was used to appraise the quality of papers and a narrative synthesis was undertaken. Relevant English and Chinese systematic reviews were searched in Embase, PubMed, Web of science, OVID, CNKI, CBM, Wan Fang and Cochrane Library databases, until November 2021, June 2022.
ResultsOut of 1,905 records, we included fourteen systematic reviews for a synthesis. Evidence to promote social support for caregivers of children with chronic diseases was identified from four key aspects: (i) Intervention content; (ii) Intervention forms; (iii) Intervention time; and (iv) Sources of support.
ConclusionsThe findings of this review suggest that a combination of differing interventions, especially for early family, including the content of parenting training or education, attitude building and resource provision, which can implement online is recommend. More interventional studies and quantitative evidence syntheses are still needed.
ImpactAdequate social support is essential to promote the psychological wellbeing of caregivers of children with chronic diseases. In the early stage of children's diseases, integrating different content and forms of interventions for caregivers' families and actively helping caregivers to identify available support resources can improve social support. The findings from this review can be used to guide caregivers of children with chronic diseases and provide evidence for healthcare professionals and social workers to carry out relevant interventions.

背景
社会支持是改善慢性病患儿照护者心理社会健康状况、促进其积极应对的重要路径。该手段可减轻育儿压力，借助各类社会支持关系帮助照护者解决育儿困境。

方法
本研究采用伞状综述（umbrella review）方法，对系统综述进行检视、分析与综合。采用系统综述与Meta分析优先报告条目（PRISMA）流程图展示检索流程，使用乔安娜·布里格斯研究所（Joanna Briggs Institute）量表对文献质量进行评价，并开展叙述性综合分析。检索了Embase、PubMed、Web of Science、OVID、中国知网（CNKI）、中国生物医学文献数据库（CBM）、Wan Fang及Cochrane图书馆（Cochrane Library）等数据库中2021年11月至2022年6月期间发表的相关中英文系统综述。

结果
本研究共检索到1905条记录，最终纳入14篇系统综述进行综合分析。针对慢性病患儿照护者的社会支持干预证据可归纳为四大关键维度：（i）干预内容；（ii）干预形式；（iii）干预时机；（iv）支持来源。

结论
本综述结果提示，推荐采用差异化干预组合方案，尤其针对患儿患病早期的家庭，纳入育儿培训教育、态度塑造及资源供给等内容，且该类干预可通过线上方式实施。未来仍需开展更多干预类研究与定量证据综合工作。

研究意义
充足的社会支持对改善慢性病患儿照护者的心理福祉至关重要。在儿童患病早期，整合针对照护者家庭的多内容、多形式干预，并主动协助照护者识别可获取的支持资源，可有效提升社会支持水平。本综述的研究结果可用于指导慢性病患儿照护者实践，并为医疗保健专业人员与社会工作者开展相关干预工作提供循证依据。