caregiver burden, time of caring and dependence

The sample is 135 informal caregivers, some of them take care more than one dependent person. Data was collected between 2014-2016.Sociodemographic characteristics of caregivers and dependent persons, the level of cooperation between dependent individual and caregiver, information about the caregiver's own health: perceived health status and the presence of psychological or psychiatric disease and health status of the dependent persons was collected.Caregivers also filled out at home a diary where they write the exact amount of minutes devote to performing each activity of the daily life of behalf of the dependent person. Activities were indicated how ofter they occurred, and those minutes were later averaged to derive a per-day measure. The minutes allocated to housework were adjusted for household size (using the OECD's equivalence scale).The short version of the ZBI which comprises 7 questions [range 7-35]. Scoring 17 or more are viewed as being "severely" burdened. DEP-6D index was filled in. The scores can be as low as -0.84 and as high as 1 (no dependence).A mean ZBI score was obtained for each caregiver-dependent pair. IT was also estimated three logistic regression models to analyse the association between the variables just described and the likelihood of being severely burdened and three linear regression models to measure the association between these mean ZBI scores and the characteristics of the corresponding dependent person and caregiver. The dependent variable was ZBI and the explanatory variables were the caregiver's and dependent's characteristics. Sociodemographic data and health status of the caregiver were always included. Dependence was measured by accounting for the minutes of care or using the DEP-6D index. The dimension of DEP-6D were transformed into binary variables to introduce in some models.It was approved by the Committee on Ethics of Clinical Research in Galicia (code 2012/381).<br>

本数据集的研究样本为135名非正式照料者（informal caregivers），其中部分照料者需同时照料多名受照料者。数据采集工作于2014年至2016年间完成。本次采集的信息涵盖：照料者与受照料者的社会人口学特征、受照料者与照料者间的协作水平、照料者自身健康状况（包括主观感知健康状态、心理或精神疾病患病情况）以及受照料者的健康状态。
此外，照料者需在家中填写日记，详细记录其为受照料者开展每项日常生活活动所耗费的精确分钟数；活动的发生频率已预先标注，后续将对记录的耗时取平均以得到日均照料时长。针对家务照料耗时，将采用经合组织（OECD）等价量表对家庭规模进行校正。
本研究使用包含7个题项的简版照料负担量表（ZBI），其得分区间为7至35分，得分≥17分者即被视为存在“重度”照料负担。同时收集了DEP-6D指数（DEP-6D index）得分，该指数的取值范围为-0.84至1（1代表无照料依赖）。
研究为每一对照料者-受照料者组合计算得到平均ZBI得分。随后构建了3个逻辑回归模型，用于分析前述变量与照料者出现重度照料负担的概率之间的关联；同时构建3个线性回归模型，以探究上述平均ZBI得分与对应受照料者、照料者特征之间的关联。本研究的因变量为ZBI得分，解释变量为照料者与受照料者的各项特征，其中照料者的社会人口学数据与健康状态始终被纳入所有模型。照料依赖程度通过照料时长或DEP-6D指数进行衡量，部分模型中将DEP-6D的维度转换为二分类变量。
本研究已通过加利西亚临床研究伦理委员会批准，审批编号为2012/381。