Patient and clinician priorities for the organization of primary cardiovascular care in Quebec [Delphi study]

Cardiovascular diseases are the leading cause of death and disability worldwide. Little is known about the organizational priorities of patients and clinicians involved in primary cardiovascular care. This study aimed to identify their shared top priorities and explore on which aspects their perspectives differed.  

A three-round modified e-Delphi study was carried out with patients and clinicians in seven primary care settings from metropolitan, suburban and small-town areas in Quebec, Canada. Patient partners experienced in the mobilization of their experiential knowledge also participated in the study. 

Following an “open” round (up to 5 important organizational aspects mentioned in free-text fields), the items elicited were assessed by a combined rating and ranking approach during rounds 2 and 3. Participants were randomly allocated to a rating or ranking subpanel stratified by their sex (female, male) and status (clinic patient, faculty patient partner, clinician) to maintain balance between both groups. Items achieving an initial consensus level ≥70% in round 2 were reassessed during the final (third) round.

The study was approved by the University of Montreal Hospital Research Centre’s research ethics committee (project number 17.305). Participant recruitment and data collection took place over a one-year period, from November 2019 to November 2020. 

Please see the README_file for more information about the variables in the dataset.

心血管疾病是全球范围内致死与致残的首要病因。目前学界对心血管初级诊疗场景中患者与临床医师的组织优先级认知仍较为匮乏。本研究旨在明确二者共同的核心优先级，并探索其观点存在分歧的维度。

本研究针对加拿大魁北克省都市、郊区及小城镇地区的7家基层医疗结构，开展了三轮改良式电子德尔菲（e-Delphi）研究，招募患者与临床医师参与。此外，具备动员自身经验性知识经历的患者合作者也参与了本项研究。

首轮调研采用开放式设置：参与者可通过自由文本字段最多提及5项重要的组织维度；随后在第二、三轮调研中，通过评分与排序结合的方式对征集得到的条目进行评估。参与者按性别（女、男）及身份（门诊患者、患者合作者、临床医师）进行分层后，被随机分配至评分子组或排序子组，以保证两组间的平衡。在第二轮调研中达成≥70%初始共识阈值的条目，将在最终（第三轮）调研中进行重新评估。

本研究已获得蒙特利尔大学医院研究中心伦理审查委员会批准（项目编号：17.305）。参与者招募与数据采集工作于2019年11月至2020年11月的一年内完成。

有关本数据集变量的更多信息，请参阅README_file文件。