Millennium Cohort Study: Linked Health Administrative Data (Scottish Medical Records), Inpatient and Day Care Attendance, 2000-2015: Secure Access

<p><i>Background</i>:<br>The Millennium Cohort Study (MCS) is a large-scale, multi-purpose longitudinal dataset providing information about babies born at the beginning of the 21st century, their progress through life, and the families who are bringing them up, for the four countries of the United Kingdom. The original objectives of the first MCS survey, as laid down in the proposal to the Economic and Social Research Council (ESRC) in March 2000, were:</p><ul><li>to chart the initial conditions of social, economic and health advantages and disadvantages facing children born at the start of the 21st century, capturing information that the research community of the future will require</li><li>to provide a basis for comparing patterns of development with the preceding cohorts (the <i>National Child Development Study</i>, held at the UK Data Archive under GN 33004, and the <i>1970 Birth Cohort Study</i>, held under GN 33229)</li><li>to collect information on previously neglected topics, such as fathers' involvement in children's care and development</li><li>to focus on parents as the most immediate elements of the children's 'background', charting their experience as mothers and fathers of newborn babies in the year 2000, recording how they (and any other children in the family) adapted to the newcomer, and what their aspirations for her/his future may be</li><li>to emphasise intergenerational links including those back to the parents' own childhood</li><li>to investigate the wider social ecology of the family, including social networks, civic engagement and community facilities and services, splicing in geo-coded data when available</li></ul><p>Additional objectives subsequently included for MCS were:</p><ul><li>to provide control cases for the national evaluation of Sure Start (a government programme intended to alleviate child poverty and social exclusion)</li><li>to provide samples of adequate size to analyse and compare the smaller countries of the United Kingdom, and include disadvantaged areas of England</li></ul><p>Further information about the MCS can be found on the <a href="https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/" target="_blank">Centre for Longitudinal Studies</a> web pages.</p><p>The content of MCS studies, including questions, topics and variables can be explored via the <a href="https://discovery.closer.ac.uk/item/uk.cls.mcs/0d8a7220-c61b-4542-967d-a40cb5aca430">CLOSER Discovery</a> website. <br></p><p>The first sweep (MCS1) interviewed both mothers and (where resident) fathers (or father-figures) of infants included in the sample when the babies were nine months old, and the second sweep (MCS2) was carried out with the same respondents when the children were three years of age. The third sweep (MCS3) was conducted in 2006, when the children were aged five years old, the fourth sweep (MCS4) in 2008, when they were seven years old, the fifth sweep (MCS5) in 2012-2013, when they were eleven years old, the sixth sweep (MCS6) in 2015, when they were fourteen years old, and the seventh sweep (MCS7) in 2018, when they were seventeen years old, and the eighth sweep (MCS8) in 2023-2025, when they were 23 years old. .<br><br><i>Safeguarded versions of MCS studies</i>:<br>The Safeguarded versions of MCS1, MCS2, MCS3, MCS4, MCS5, MCS6, MCS7 and MCS8 are held under UK Data Archive SNs 4683, 5350, 5795, 6411, 7464, 815, 8682 and 9509 respectively. The Longitudinal Files are held under SN 8172.<br><br><span style="font-style: italic;">Polygenic Indices</span><br>Polygenic indices are available under Special Licence SN 9437. Derived summary scores have been created that combine the estimated effects of many different genes on a specific trait or characteristic, such as a person's risk of Alzheimer's disease, asthma, substance abuse, or mental health disorders, for example. These polygenic scores can be combined with existing survey data to offer a more nuanced understanding of how cohort members' outcomes may be shaped. <br><br><span style="font-style: italic;">Sub-sample studies</span>:<br>Some studies based on sub-samples of MCS have also been conducted, including a study of MCS respondent mothers who had received assisted fertility treatment, conducted in 2003 (see EUL SN 5559). Also, birth registration and maternity hospital episodes for the MCS respondents are held as a separate dataset (see EUL SN 5614).<br><br><span style="font-style: italic;">Release of Sweeps 1 to 4 to Long Format (Summer 2020)<br></span>To support longitudinal research and make it easier to compare data from different time points, all data from across all sweeps is now in a consistent format. The update affects the data from sweeps 1 to 4 (from 9 months to 7 years), which are updated from the old/wide to a new/long format to match the format of data of sweeps 5 and 6 (age 11 and 14 sweeps). The old/wide formatted datasets contained one row per family with multiple variables for different respondents. The new/long formatted datasets contain one row per respondent (per parent or per cohort member) for each MCS family. Additional updates have been made to all sweeps to harmonise variable labels and enhance anonymisation. <span style="font-style: italic;"> <br></span><i><br>How to access genetic and/or bio-medical sample data from a range of longitudinal surveys:<br></i>For information on how to access biomedical data from MCS that are not held at the UKDS, see the <a href="https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/" target="_blank">CLS Genetic data and biological samples</a> webpage.<br><br><span style="font-weight: bold;">Secure Access datasets</span>:<br>Secure Access versions of the MCS have more restrictive access conditions than versions available under the standard Safeguarded Licence or Special Licence (see 'Access data' tab above).<br><br>Secure Access versions of the MCS include:</p><p></p><p></p><ul><li>detailed sensitive variables not available under EUL. These have been grouped thematically and are held under SN 8753 (socio-economic, accommodation and occupational data), SN 8754 (self-reported health, behaviour and fertility), SN 8755 (demographics, language and religion) and SN 8756 (exact participation dates). These files replace previously available studies held under SNs 8456 and 8622-8627</li><li>detailed sensitive data from the MCS8 survey, and responses from triplets held under SN 9510</li><li>detailed geographical identifier files which are grouped by sweep held under SN 7758 (MCS1), SN 7759 (MCS2), SN 7760 (MCS3), SN 7761 (MCS4), SN 7762 (MCS5 2001 Census Boundaries), SN 7763 (MCS5 2011 Census Boundaries), SN 8231 (MCS6 2001 Census Boundaries), SN 8232 (MCS6 2011 Census Boundaries), SN 8757 (MCS7), SN 8758 (MCS7 2001 Census Boundaries) and SN 8759 (MCS7 2011 Census Boundaries). These files replace previously available files grouped by geography SN 7049 (Ward level), SN 7050 (Lower Super Output Area level), and SN 7051 (Output Area level)</li><li>linked education administrative datasets for Key Stages 1, 2, 4 and 5 held under SN 8481 (England).  This replaces previously available datasets for Key Stage 1 (SN 6862) and Key Stage 2 (SN 7712)<br></li><li>linked education administrative datasets for Key Stage 1 held under SN 7414 (Scotland)</li><li>linked education administrative dataset for Key Stages 1, 2, 3 and 4 under SN 9085 (Wales)<br></li><li>linked NHS Patient Episode Database for Wales (PEDW) for MCS1 – MCS5 held under SN 8302</li><li>linked Scottish Medical Records data held under SNs 8709, 8710, 8711, 8712, 8713 and 8714;</li><li>Banded Distances to English Grammar Schools for MCS5 held under SN 8394</li><li>linked Health Administrative Datasets (Hospital Episode Statistics) for England for years 2000-2019 held under SN 9030</li><li>linked Hospital of Birth data held under SN 5724.</li></ul><p>The linked education administrative datasets held under SNs 8481,7414 and 9085 may be ordered alongside the MCS detailed geographical identifier files only if sufficient justification is provided in the application. <br><br>Researchers applying for access to the Secure Access MCS datasets should indicate on their ESRC Accredited Researcher application form the EUL dataset(s) that they also wish to access (selected from the MCS Series <a href="https://beta.ukdataservice.ac.uk/datacatalogue/series/series?id=2000031#!/access-data" target="_blank">Access</a> web page).</p><p></p>
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<p class="x_x_x_x_MsoNormal">The <span style="font-style: italic;">Millennium Cohort Study: Linked Health Administrative Data (Scottish Medical Records), Inpatient and Day Care Attendance, 2000-2015: Secure Access</span> includes data files from the NHS Digital Hospital Episode Statistics database for those cohort members who provided consent to health data linkage in the Age 50 sweep, and had ever lived in Scotland. The Scottish Medical Records database contains information about all hospital admissions in Scotland. This study concerns the Scottish Birth Records.<br></p><p class="x_x_x_x_MsoNormal">Other datasets are available from the Scottish Medical Records database, these include:</p><ul><li>Child Health Reviews (CHR) held under <a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=8709" target="_blank">SN 8709</a></li><li>Prescribing Information System (PIS) held under <a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=8710">SN 8710</a><a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=8711" target="_blank"></a></li><li>Scottish Immunisation and Recall System (SIRS) held under <a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=8711" target="_blank">SN 8711</a></li><li>Scottish Birth Records (SMR11) held under <a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=8712" target="_blank">SN 8712</a></li><li>Outpatient Attendance (SMR00) held under <a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=8714" target="_blank" style="outline-style: initial; outline-width: 0px; color: rgb(35, 82, 124); text-decoration-line: underline;">SN 8714</a></li></ul><p class="x_x_x_x_x_MsoNormal">Users should note that linkage to explicit low-level Scottish geographies is not permitted and the studies that cannot be used in conjunction with these data are detailed in the Access section.</p>

<p><i>背景</i>:<br>千年队列研究（Millennium Cohort Study, MCS）是一项大规模多用途纵向数据集，针对英国四个构成国，收录了21世纪初出生婴儿及其人生成长历程、养育家庭的相关信息。2000年3月向经济和社会研究理事会（Economic and Social Research Council, ESRC）提交的初始提案中，首次MCS调查的原始目标如下：</p><ul><li>描绘21世纪初出生儿童所面临的社会、经济与健康优劣处境，留存未来研究群体所需的相关数据</li><li>为与此前出生队列的发展模式进行对比提供基础，包括存于英国数据档案馆（UK Data Archive）编号GN 33004的《全国儿童发展研究》（National Child Development Study），以及编号GN 33229的《1970出生队列研究》（1970 Birth Cohort Study）</li><li>收集此前被忽视的议题相关信息，例如父亲在儿童照护与成长中的参与情况</li><li>以作为儿童最直接成长背景的父母为核心，记录2000年时作为新生儿父母的经历，追踪他们（以及家庭中其他子女）如何适应新成员的到来，以及他们对孩子未来的期望</li><li>强调代际联系，包括追溯至父母自身童年的关联</li><li>探究家庭所处的社会生态，包括社会网络、公民参与、社区设施与服务，并在可用时整合地理编码数据</li></ul><p>后续为MCS新增的目标包括：</p><ul><li>为《确保开端》（Sure Start，一项旨在缓解儿童贫困与社会排斥的政府项目）的全国评估提供对照样本</li><li>提供足够大的样本量，以分析并对比英国各构成小国的情况，并纳入英格兰的弱势区域</li></ul><p>有关MCS的更多信息可查阅<a href="https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/" target="_blank" style="background-color: rgb(255, 255, 255);">纵向研究中心（Centre for Longitudinal Studies, CLS）</a>的官方网页。</p><p>可通过<a href="https://discovery.closer.ac.uk/item/uk.cls.mcs/0d8a7220-c61b-4542-967d-a40cb5aca430">CLOSER探索平台（CLOSER Discovery）</a>浏览MCS研究的内容，包括问卷题目、研究主题与变量。</p><p>首次随访波次（MCS1）在婴儿9个月大时，对样本中的母亲以及（若同住的）父亲或父亲形象照料者进行了访谈；第二次随访波次（MCS2）在儿童3岁时，对同一批受访者开展调研。第三次随访波次（MCS3）于2006年实施，彼时儿童年满5岁；第四次随访波次（MCS4）于2008年实施，儿童年满7岁；第五次随访波次（MCS5）于2012-2013年实施，儿童年满11岁；第六次随访波次（MCS6）于2015年实施，儿童年满14岁；第七次随访波次（MCS7）于2018年实施，儿童年满17岁。</p><div><br></div><i>MCS研究的最终用户许可版本</i>:<br>MCS1至MCS7的最终用户许可（End User Licence, EUL）版本分别存于英国数据档案馆编号SN 4683、5350、5795、6411、7464、8156与8682。纵向家庭文件的存档编号为SN 8172。<br><br><i>子样本研究</i>:<br>另有部分基于MCS子样本的研究得以开展，例如2003年实施的针对接受辅助生殖治疗的MCS受访母亲的研究（参见最终用户许可版本编号SN 5559）。此外，MCS受访者的出生登记与产科医院就诊记录作为独立数据集存档（参见最终用户许可版本编号SN 5614）。<br><br><div><span style="font-style: italic;">第1至4波次数据转为长格式发布（2020年夏季）</span></div><div>为支持纵向研究并简化不同时间点数据的对比工作，所有波次的数据现已统一为标准格式。本次更新涉及第1至4波次（对应儿童9个月至7岁阶段）的数据，将其从旧的宽格式转换为新的长格式，以匹配第5、6波次（对应儿童11岁与14岁阶段）的数据格式。旧宽格式数据集以家庭为单位，每个家庭一行，包含针对不同受访者的多组变量；新长格式数据集则以受访者为单位，每个MCS家庭下，每位父母或队列成员各占一行。此外，所有波次的数据均已更新变量标签并强化匿名化处理。</div><br><i>如何获取多项纵向调查的遗传及/或生物医学样本数据</i>:<br>如需了解如何获取未存于英国数据档案馆的MCS生物医学数据，请查阅<a href="https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/" target="_blank" style="background-color: rgb(255, 255, 255);">CLS遗传数据与生物样本</a>官方网页。<br><br><b>安全访问数据集</b>:<br>MCS的安全访问版本相较于标准最终用户许可或特殊许可版本，拥有更为严格的访问条件（详见上方“获取数据”标签页）。<br><br>MCS的安全访问版本包括：<br><ul><li>最终用户许可版本未收录的详细敏感变量。这些变量已按主题分组，分别存于编号SN 8753（社会经济、住宿与职业数据）、SN 8754（自我报告健康、行为与生育情况）、SN 8755（人口统计、语言与宗教）以及SN 8756（精确参与日期）的文件中。上述文件替代了此前以SN 8456与SN 8622-8627存档的研究数据集</li><li>按波次分组的详细地理标识文件，分别存于编号SN 7758（MCS1）、SN 7759（MCS2）、SN 7760（MCS3）、SN 7761（MCS4）、SN 7762（MCS5 2001年普查边界）、SN 7763（MCS5 2011年普查边界）、SN 8231（MCS6 2001年普查边界）、SN 8232（MCS6 2011年普查边界）、SN 8757（MCS7）、SN 8758（MCS7 2001年普查边界）以及SN 8759（MCS7 2011年普查边界）的文件中。上述文件替代了此前以地理分组的SN 7049（选区级别）、SN 7050（下级超级输出区级别）以及SN 7051（输出区级别）的存档文件</li><li>存于编号SN 8481（英格兰）的关键阶段1、2、4、5的关联教育行政数据集。该数据集替代了此前以SN 6862（关键阶段1）与SN 7712（关键阶段2）存档的数据集</li><li>存于编号SN 7414（苏格兰）的关键阶段1的关联教育行政数据集</li><li>存于编号SN 9085（威尔士）的关键阶段1、2、3、4的关联教育行政数据集</li><li>存于编号SN 8302的、覆盖MCS1至MCS5的威尔士NHS患者事件数据库（NHS Patient Episode Database for Wales, PEDW）关联数据集</li><li>存于编号SN 8709、8710、8711、8712、8713与8714的苏格兰医疗记录关联数据集</li><li>存于编号SN 8394的、针对MCS5的英格兰文法学校距离分级数据</li><li>存于编号SN 9030的、覆盖2000-2019年英格兰的关联健康行政数据集（医院事件统计数据库, Hospital Episode Statistics）</li><li>存于编号SN 9310的、威尔士的关联健康行政数据集（匿名安全信息链接系统, SAIL）</li><li>存于编号SN 5724的出生医院关联数据</li></ul><p>仅当申请中提供充分理由时，方可将以SN 8481、7414与9085存档的关联教育行政数据集与MCS详细地理标识文件一并订购。</p><br><p>申请获取MCS安全访问数据集的研究者，需在ESRC认证研究者申请表中注明其同时希望获取的最终用户许可版本数据集（可从MCS系列<a href="https://beta.ukdataservice.ac.uk/datacatalogue/series/series?id=2000031#!/access-data" target="_blank">获取数据</a>网页中选择）。</p><br><p></p><p class="x_x_x_x_MsoNormal">《千年队列研究：关联健康行政数据集（苏格兰医疗记录）、住院与日间就诊记录，2000-2015：安全访问》包含了在50岁随访波次中同意进行健康数据关联、且曾在苏格兰居住的队列成员的NHS数字医院事件统计数据库相关数据。苏格兰医疗记录数据库收录了苏格兰境内所有住院就诊的相关信息。本研究涉及苏格兰出生记录。<br></p><p class="x_x_x_x_MsoNormal">可从苏格兰医疗记录数据库获取的其他数据集包括：</p><ul><li>存于<a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=8709" target="_blank">SN 8709</a>的儿童健康评估（Child Health Reviews, CHR）</li><li>存于<a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=8710">SN 8710</a>的处方信息系统（Prescribing Information System, PIS）</li><li>存于<a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=8711" target="_blank">SN 8711</a>的苏格兰免疫与召回系统（Scottish Immunisation and Recall System, SIRS）</li><li>存于<a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=8712" target="_blank">SN 8712</a>的苏格兰出生记录（SMR11）</li><li>存于<a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=8714" target="_blank" style="outline-style: initial; outline-width: 0px; color: rgb(35, 82, 124); text-decoration-line: underline;">SN 8714</a>的门诊就诊记录（SMR00）</li></ul><p class="x_x_x_x_x_MsoNormal">用户需注意，不得将数据与明确的低级别苏格兰地理信息关联，且无法与这些数据结合使用的研究详情已在“获取数据”章节中列明。</p>