Endometriosis occupationnal

The objective of this study is to explore and describe the professional impact of deep infiltrating endometriosis on infertile women. We conducted a qualitative monocentric study between December 2020 and June 2021. Twelve semi-structured in-depth interviews using a theme-based interview guide with open questions were undertaken with infertile women with deep infiltrating endometriosis. Data analysis was conducted using an inductive approach according to the grounded theory method. Three main themes emerged from the interviews: (i) barriers to reconciling illness and work life, (ii) facilitating factors for well-being at work, and (iii) consequences and outlooks. It appeared that the time of infertility treatment represents a particular period of change in the working lives of women with endometriosis. For most women, these changes are experienced negatively, often with a renunciation of goals. For others, this is the time to communicate the difficulties linked to their illness to their professional entourage. There is a long path ahead to finally achieving recognition of endometriosis in the context of professional life.本研究旨在探讨并描述深部浸润型子宫内膜异位症（deep infiltrating endometriosis）对不孕女性的职业影响。我们于2020年12月至2021年6月期间开展了一项单中心定性研究。研究纳入12名患有深部浸润型子宫内膜异位症的不孕女性，采用基于主题的开放式访谈提纲开展半结构化深入访谈。数据分析采用基于扎根理论方法的归纳法进行。访谈结果提炼出三大核心主题：（i）平衡疾病与职场生活的阻碍因素，（ii）职场福祉的促进因素，以及（iii）职业后果与未来展望。研究发现，不孕治疗阶段是子宫内膜异位症女性职场生涯发生特殊改变的时期。多数女性对此阶段的变化持负面体验，往往伴随职业目标的放弃；而另有部分女性则借此机会向职场周遭人员坦诚自身疾病相关的困境。目前，要在职业场景中实现对子宫内膜异位症的认知认可，仍有漫长的道路要走。